Search found 19 matches

by frijkaard
Sat Jan 04, 2014 9:50 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: NO JUGULAR STENTS
Replies: 29
Views: 7604

Re: NO JUGULAR STENTS

Robert, Sorry for the late reply (I think almost two months since your reply to my post) Fortunately, Dr. Scalifani saw my post and reached out to me. Our discussions lead to me deciding to see him for a consultation. Anyway, thank you for your reply and his contact info! By the way ,given my chosen...
by frijkaard
Tue Nov 26, 2013 12:02 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: NO JUGULAR STENTS
Replies: 29
Views: 7604

Re:

I got a Polish Neptune stent, wit large holes. The doc in Belgium told me he would never use such a stent in arteries, so i suppose this stent is more suited for veins...(but i'm no doctor :P ) I do not know this stent, so won't make judgment, but it appears that this stent was made for the bile du...
by frijkaard
Sat Sep 18, 2010 8:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2836006

Dr. Sclafani, I was " liberated" a couple of weeks ago here in the States. I had blockage in my left jugular and the azygos. Since that time, I have rested most of the time as I keep reading on this board that you should take it easy and get lots of rest following the procedure. Although I...
by frijkaard
Sat Sep 18, 2010 7:49 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Other veins involved in CCSVI??
Replies: 11
Views: 3585

I was " liberated" a couple of weeks ago here in the States. I had blockage in my left jugular and the azygos. Since that time, I have rested most of the time as I keep reading on this board that you should take it easy and get lots of rest following the procedure. Although I didn't feel t...
by frijkaard
Wed Aug 11, 2010 1:20 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: AFA formation in Canada
Replies: 0
Views: 1736

AFA formation in Canada

Angioplasty For All (AFA) is an organization of Canadians who have disabilities stemming from Central Nervous System (CNS) damage. The traditional diagnosis is Multiple Sclerosis (MS). AFA not only includes MS patients, but also their families, friends and anyone touched by the consequences of MS. W...
by frijkaard
Wed Jul 28, 2010 9:13 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Liberation drugs
Replies: 9
Views: 2515

Liberation drugs

For those that have already been "liberated" (I will get the procedure done in the next thirty days) I'd like to know what drug or drugs(if any) that you are currently on and why. I just got a new nuerolgist who is openminded and believes in CCSVI. However, he says that after liberation al...
by frijkaard
Sat Jul 24, 2010 6:50 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: recovery time in CCSVI operation?
Replies: 2
Views: 1990

recovery time in CCSVI operation?

I plan to have the procedure done. Any idea of the recovery time involved?
by frijkaard
Thu Jul 01, 2010 5:26 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 240387

I am on the waiting list for The Comunity center in Albany. I received a call from Kirsten a week or two after I signed up telling me that someone (a doctor?) would contact me in three weeks. Three weeks has come and gone. I left a message a couple of days ago and got their "Be patient....don't...
by frijkaard
Wed May 26, 2010 11:23 am
Forum: Low Dose Naltrexone
Topic: Doctors that prescribe LDN - current list for 2005?
Replies: 9
Views: 17465

You can e-mail me lists (Dr's or neurologists in so. cal) who can prescribe LDN in the southern California area. My e-mail address is frijkaard@aol.com

Thanks!
by frijkaard
Mon May 24, 2010 2:53 pm
Forum: Low Dose Naltrexone
Topic: Doctors that prescribe LDN - current list for 2005?
Replies: 9
Views: 17465

Joyce, I have attempted to email you on a couple of occasions but nothing from you. How do you think I should proceed?
by frijkaard
Wed May 19, 2010 12:03 pm
Forum: Low Dose Naltrexone
Topic: Dr. Bernard Bihari has passed away....
Replies: 5
Views: 7621

I am sorry to hear of his passing. I will forever remember him for the relief that LDN provided me. when I was diagonsed four years ago. I was assigned a neurologist who immediatley put me on copaxone. Besides enduring the daily needles which I hated (I don't know anyone who loves them), I suffered ...
by frijkaard
Wed May 19, 2010 10:34 am
Forum: Low Dose Naltrexone
Topic: Doctors that prescribe LDN - current list for 2005?
Replies: 9
Views: 17465

What about Southern California? Does anybody have a list of doctors who prescribe LDN?
by frijkaard
Thu May 06, 2010 9:08 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Canadian MS Society lobbies govt' for CCSVI $$
Replies: 32
Views: 9667

AMEN to your proposal![/quote]
by frijkaard
Wed May 05, 2010 9:02 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: ms society dinner
Replies: 15
Views: 4865

Incredible!.......and this thing is the Director in Portland? This society is supposed to be an advocate for us. Instead, they are too influenced by the political and big pharma.Facts seem to dictate that CCSVI has profoundly improved the lives of many people who have undergone the procedure. Yet al...
by frijkaard
Mon Apr 26, 2010 6:15 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: anyone heard back from Dr. Mehta's group?
Replies: 8
Views: 3367

Has anybody heard anything from Megan regarding their place in line? or if they have officially been accepted? I applied a while ago but haven't received anything official. I am growing a bit frustrated too. I am in year five of my MS Dx (pp). The last six months have seen things really get worse fo...

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