This Is MS Multiple Sclerosis Knowledge & Support Community

There seem to be a number of companies that are making exoskeletons to aid paraplegics to walk. Has anyone with MS tried one of these exoskeletons? They seem like they may be helpful for retraining balance and muscle movement.

Bionic "Robot Trousers"

I loved that Wallace and Grommit. I thought at the time, that is exactly what I need to make my legs walk right, techno trousers. I had the next best thing last week, an implant of the ITB Baclofen Pump. I believe that it will help me immensely once I get over the speed bump of the spinal fluid leak...

I believe that she only found out that she was pregnant at the end of November, so it will be a few more months until anyone knows if the baby is okay. Have you talked with your doctor about all of this? It seems like that would be a good resource. Even if he or she does not agree, your doctor proba...

I know there was a girl in the Campath trial, at my doctor office, that recently had to be pulled from the trial because she got pregnant. I don't know for sure, but I don't think that Campath dramatically changes fertility, but they made me sign a paper that said I would actively try not to get pre...

I finished my second Campath treatment last week. I am very slowly beginning to get better. My legs are more coordinated and less spastic. I am able to walk in my house without my cane, and I hope to be able to start riding my exercise bike again in the near future. My last MRI showed that I actuall...

freiguy wrote:Are you getting the second dose which is three days instead of five? Good luck with everything. Keep us posted on you progress.

Yes, this is my second dose of Campath, that is why it is only 3 days.

Update: LittleLisa is going to get Campath again My doctor decided to keep me in the trial. I am going to be getting Campath again next week. Apparently, the Campath will not limit my doctor from being able to treat a relapse in the future (although, I hope she will not need to). I also think that ...

I am sorry for your troubles, too, Grumpster. Were you on Rebif right before Campath (not including the 1 month or so detox period)? If so, I wonder if it was the combination of Rebif and Campath that made us both improve for a short time? Interesting concept. I hope you get through the ITP safely. ...

Thank you all for your thoughts and kind wishes. I will get through this, I am just a little frustrated right now. You all have made me feel better. I just have to remember "this, too, will pass", "this, too, will pass", and eventually I will be relatively okay again. Thanks to e...

Thank you, Kristin. I am really glad to hear from someone that has been in a similar situation. My problems are also mainly related to walking, leg coordination, severe stiffness and spasticity of my legs, and balance problems. I will definitely speak with my doctor about the use of Campath sooner t...

In this trial, it is okay for the patient to know what drug that they are on, just not the dosing. The doctor that administers the EDSS testing is not allowed to know. You are correct, the Campath is given as a several hour infusion for 5 days the first year, and 3 days the second year, where as Reb...

No placebo arm of this trial. Patients either got Rebif or Campath. That is why I signed up. I was already on Rebif, and I thought that it would be nice to have the drug company pay for it, and MRI's once per year, if I was not given Campath. I lucked out (or at least I thought I did) and was assign...

Gamunex is a brand of Immunoglobulin G ( a chemical that is natuarally present in your immune system). Gamunex is also called IVIG, as it is given by IV over several days. The drug is made by purifying it from human plasma. It is believed that the overabundance of this chemical in an MS patient &quo...

I was in the CAMMS323 trial and I received Campath (although I still do not know the dosage). I was only diagnosed with RRMS for one year and 2 months before going into the trial. I am currently at month 11, and will likely be pulled out of the study. I tolerated the infusions very well, and even co...