Search found 5 matches

by fmanerchia
Sun Dec 19, 2010 10:02 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Ms, but no CCSVI
Replies: 4
Views: 2224

Cece, Thanks for the upbeat reply. I was thinking that because I didn't have any stenosis, that Dr.W-K only treated an incidental malformation, that anyone could have. He had fill out a 15-page neoro questionaire. He wants me to fill it out again at 1 week, 2 week, and one month intervals to track d...
by fmanerchia
Sat Dec 18, 2010 11:27 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Ms, but no CCSVI
Replies: 4
Views: 2224

Ms, but no CCSVI

Earlier this year, I was contacted by Community Care about CCSVI. They said that they would call me in the second or third quarter of 2011 and that 1-2 months later, I would get the liberation process. About a month after that I was contacted by the Vascular Foundation. They wanted to set up an appo...
by fmanerchia
Tue Jul 13, 2010 10:13 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Simple questions
Replies: 7
Views: 3357

Cece and Blaze
Many thanks for answering my questions. So I guess the only way to find a participating IR is keep calling until you hit paydirt?
by fmanerchia
Tue Jul 13, 2010 8:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Simple questions
Replies: 7
Views: 3357

Cece,
Thanks for the answers. What symptoms would necessitate my primary ordering the tests? I was just reading a post about donating blood having a positive (but temporary) effect. Is the issue too much iron in the brain or in the blood ?
by fmanerchia
Tue Jul 13, 2010 7:40 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Simple questions
Replies: 7
Views: 3357

Simple questions

Maybe I just named the subject that because I'm a simple guy. I'm a long time lurker and I've been captivated by the CCSVI news since it broke. I was just wondering about a few points. How can you tell how much iron is in your brain? What symptoms would lead to a doctor ordering a Venography (regard...

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