This Is MS Multiple Sclerosis Knowledge & Support Community

The thing to do now is to keep banging the drum from the fanpage. 100 + fans(although many are Italian) each with 150(ave) friends...do the math. What numbers are we looking for? 10k? that would be 10% of MSers in UK...think we could go higher than that? As well as wanging out there to loads of othe...

I was thinking if we should organise some foot soldiers to go to their MPs open days, what are they called clinics or something?

Skallywags, Dovechick....it's a busy day for CCSVI, a new revised protocol from Dr Haacke and another US University on board.

http://bit.ly/8kxlm3
http://bit.ly/4n0R6i

MarkW, FWiW I agree with most of your posts and will reply to each in turn: 1. Agree but recently colmmc has been contacted in relation to the petition, my understanding is the story will be ablout the action, not any personal story about what we're actioning. colmmc is the story, someone willing to...

With relation to getting high profile people on board, does anyone know if David McClean MP for Penrith and Fiona MacTaggart MP for Swindon, who both suffer with MS have been contacted? Hi luvsadonut...me too! As a group only a couple of people have been contacted at the moment, we're still putting...

Fascbook's down...what the hell do I do now? I'm going to go and ask someone on twitter.

Not around tonight, keep up the great work...

OK, contacted her husband, let's wait and see.

Just thought you'd like to know that there's a BBC Scotland reporter, based in Edinburgh, called Elizabeth Quigley who has MS. She's married to John Swinney who's Scotland's Cabinet Secretary for Finance.

Did anyone take on getting in touch with Elizabeth Sweeney?

colmmc, how are you getting on with the Press story, have you responded yet? Keep us updated, if you need more support, let us know.

Hey guys, think this should be included?

Hey you promised you weren't going to check this site until later...little Skallywag!

Skallywags, this is great! I'm tired too so will have another look at it tomorrow. It's looking like a bigger job than we thought so it might be prudent to get some support? Up to you... The other thing is to focus on who this pack is intended for... my understanding was this was to be the pack we s...

Hi, just to let you know that the CCSVI facebook page is now asking people to provide information of regional groups, facebook pages, webpages etc. Took a few attempts to get it formatted correctly but posted all 3 links: Website, Group & Petition. How inspiring to see all the other work being ...

Thinking about it we should create a press pack!
Who want's that job?