Search found 9 matches

by Lgleaton
Sun Mar 14, 2010 12:50 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dake Presentation at SIR Annual Scientific Meeting
Replies: 21
Views: 8267

YES! This is great!

The presentation is really clear and Dr. Dake's images really show the problem. Many before and afters! Did this presentation just happen this morning? I LOVE the internet :D I hope he is able to get started on some trials soon. I can easily ride my bike to Stanford from the high school where I teac...
by Lgleaton
Tue Mar 09, 2010 6:15 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI concerns
Replies: 57
Views: 15562

Looking forward to Stanford clinical trials...

I agree with everyone here! :D Yes, it's early days, and clinical trials can't happen fast enough! My understanding is that Dr. Dake at Stanford stopped the procedure in order to begin clinical trials. The emails I have from his office (form letters - not personal) indicate that those trials will be...
by Lgleaton
Sat Dec 19, 2009 11:10 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr Dake has been busy
Replies: 16
Views: 5861

Sent notes to Dr. Dake's office about enrolling in trials...

When the time comes. Fingers and toes crossed!

Lisa G
by Lgleaton
Sun Nov 29, 2009 8:47 am
Forum: Copaxone
Topic: Where do you get your motivation to keep shooting?
Replies: 19
Views: 8166

Completely understand..

...I have SO felt the same way! I went to a Copaxone "Shared Solutions" presentation locally a few years back, and a Neuro from Wayne State Uni. in Detroit announced he was beginning a study on every other day injections. I informally joined his research, even if he didn't know I was there...
by Lgleaton
Sun Nov 29, 2009 8:35 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Hope this isn't too personal, but how are people paying for
Replies: 2
Views: 2274

Insurance...

Thanks so much for the quick reply!

I have Blue Shield HMO Access+ through CalPers. I think it's pretty standard public school teacher issue. I'll be in touch with my GP tomorrow to see what I can get rolling. I really appreciate your welcome and advice.

So glad I found this site!

Lisa G
by Lgleaton
Sat Nov 28, 2009 5:42 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: High Hopes on Pacific Coast
Replies: 94
Views: 36574

The good news is that I have no new symptoms -- this was my main objective in having the stent procedure -- NOT TO PROGRESS! Great post Tracy -- I think people need to be aware there are no guarantees -- you did an excellent job of reminding everyone that the "stenter" is not going to be ...
by Lgleaton
Sat Nov 28, 2009 5:29 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Hi from Jeff, re. my stent treatment at Stanford
Replies: 268
Views: 86050

Just read every one of this thread's posts and...

...am so glad to have found such a caring group of people. No matter what happens with my MS, I know I have found a new family.

Thank you, each of you, for being here!

Lisa G :P
by Lgleaton
Sat Nov 28, 2009 4:48 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Hope this isn't too personal, but how are people paying for
Replies: 2
Views: 2274

Hope this isn't too personal, but how are people paying for

...this procedure? ...I'm new here and trying to read everything in one four-day weekend 8O !! ... The thing I don't seem to see in many posts is how folks are paying for this procedure at Dr. Dake's. I guess my real question is, has anyone been successful having his/her HMO insurance cover this? .....
by Lgleaton
Sat Nov 28, 2009 4:37 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Need info ASAP!!
Replies: 52
Views: 16392

Re: Need info ASAP!!

Hello there! How do we go about getting worked up for CCSVI? I plan on speaking to his neuro tomorrow but assume I will be scoffed at. Hi Kacey, You and I learned about this at the same time. I'm hoping someone will answer your question about how to proceed. In the meantime, I'm reading anything an...

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