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I heard about this drug yesterday (Feb 18) which was discovered by scientists at the University of Queensland. They worked with an international team to develop a molecule that fights one of the main causes of inflammatory diseases, a breakthrough researchers say could lead to safer and cheaper trea...

While prices have not yet been finalized, AMEDS was stating that the cost of the treatment and testing (and two stents) was going to be $5000 Euro. http://www.ameds.pl/Therapy_Treatment http://www.x-rates.com/calculator.html This is $6500 Canadian. Then you have to pay for airfare, usually $1500 + t...

Is anyone aware of AMEDS offering stents if angioplasty fails?

Sean

I registered in January with AMEDS. I received a tentative date of July 9. The patient coordinator, Jaroslaw Troch, told me to not book any flight as this date is preliminary and subject to change. Has anyone gone there yet and what was their experience? I am assuming that they have their license no...

As an outside observer who reads on TIMS more than he posts, I don't understand why people have to attack each other. Haven't we suffered enough emotionally from the ravages of MS? It is truly wasted energy when it becomes personal. Everyone is entitled to an opinion, even Dr. Embry. LYON doesn't ag...

If you go on facebook, on my profile, you'll see the links to the interviews that the CCSVI in MS for Nova Scotia group had with CTV, CBC, Haligonia.ca, and a you tube link. I also have some articles written by CBC, MacLeans, and CTV regarding the rallies being held nation-wide. I can put them here ...

I just wanted to say thank you to Dr. Sclafini and Nunzio for giving me feedback and explanations on my test results. I am going to be in Halifax, Nova Scotia for May 5 CCSVI Day where we will be talking to politicians and getting the media involved so that the province is aware of CCSVI and its pos...

I was tested for CCSVI by Angela Hume at the Barrie Clinic under the direction of Dr. Sandy MacDonald on April 15. The test took about 20 minutes and followed Zamboni protocol to a tee. The results were: Right: The cerebral venous outflow appears patent with no evidence of venous thrombosis. Venous ...

Some time ago, I did receive notice from Euromedic in Poland regarding CCSVI and dates of April 21 and 22. I was skeptical of the email because of the mentioning of a bank account to send the money to plus the cost of the procedure. I will post it here so that others can comment on whether it is leg...

I am scheduled for the test on April 15, which is 100% covered by the clinic. Not through reciprocal billing through OHIP which gets reimbuirsed by MSI in Nova Scotia. The clinic receptionist, Amanda, assured me that the tests were being done as part of a trial so I am responsible only for the fligh...

Marc, your posts are informative and unbiased. You put alot of thought into your points of view on discussions regarding dealing with MS and on deciding to pursue this new CCSVI theory. I wish nothing but good luck and hope to hear a new man has emerged from this procedure. I am getting tested very ...

I am going to mention this T-shirt slogan to the CCSVI in MS for Nova Scotia moderator to see if we could perhaps get some pamphlets done up for the MS Walk. This was great work done by Vonna with help by others like Esta, Lora, and Bohemianbill. If I missed others, don't take offense. I don't want ...

An article in the Saturday edition of the Cape Breton Post emphasizing the importance for action to get people screened for CCSVI. No mention of getting a surgery, because that is a little too early to pursue - many issues have to be addressed in terms of safety and efficacy. But, for goodness sake,...

sorry for the repeat on the post

I'm just happy to see researchers looking at other factors other than autoimmunity.

From the UK MSRC a new study released on January 30 2010: Australian study questions established concepts of early disease events in MS Investigators at the University of Sydney have published a study suggesting that the earliest activity seen in the brain in MS is the destruction of cells that make...