This Is MS Multiple Sclerosis Knowledge & Support Community

There are numerous examples of scientific and medical fraud but I think that CCSVI is probably the most expensive in medical history in terms of direct cost in wasted time and money and its damage to the integrity of the medical profession.

@frodo For references see my latest blog http://medicalmyths.wordpress.com/2011/02/04/the-perfect-crime-ccsvi-not-leaving-a-trace-in-ms-liberation-is-a-hoax/ Let's agree that "CCSVI" means "normal variation in head and neck venous anatomy and flow". By definition, then, it is not...

You have not read the Zamboni paper carefully. I gave you the quote from the methods. After doing the ultrasounds he made an UNBLINDED selection of MS patiens in which to do the venography. He admits himself that the study was unblinded. Why do keep insisting it was blinded? Dr. Dake has never done ...

I would go further and say that beyond a reasonable doubt "CCSVI" is not a disease and, consequently, "liberation" is useless in treating the pathology of MS.

Veins are not like arteries. Whereas arteries have to get blood to specific parts of the organs, veins (except for the portal circulation) only need to get blood back to the heart and act as reserve reservoirs in the case of hemorrhage. So there is normally a large variation in venous anatomy and fl...

Today the Globe and Mail started a series that I would highly recommend: http://www.theglobeandmail.com/life/health/new-health/health-news/fissures-in-zambonis-ms-theory-widen/article2014800/page1/ Remember that the Globe and Mail is part of CTVglobemedia that started the fad with their reports in N...

Zamboni's research was blinded. He did not know who had MS and who did not. He research was peer-reviewed and published... Not true. Here is a quote from the Methods section of his paper: "Sixty-five subjects with MS fulfilling the ECD-TCCS screening criteria and 48 controls of the HAV-C group...

Indeed there are also demyelinating lesions in the grey matter that are harder to detect with MRI and that may explain some of the discrepancy between white matter lesions and disability. But that has nothing to do with the existence or not of "CCSVI". There is no way that blockages in nec...

There is zero evidence that MS is a primarily a disease of grey matter neurones. Zamboni's study was totally UNBLINDED and should never have been published. He selected variations in the normally large spectrum of venous flow patterns and associated them with MS in subjects for whom he knew the diag...

@cheerleader MS is not a primary disease of neurones of the grey matter. It is a primarily a disease of the myelin producing glial cells of the white matter. Grey matter atrophy is due to retrograde degeneration secondary to axonal injury, NOT due to hypoxia of neurones. There is a direct correlatio...

@Mom2TynZac You might think this is "negative" but it might save you a lot of money. You initial suspicion was right. "CCSVI" IS too good to be true. AMC will undoubtedly find "CCSVI" because they are not about to turn away a desperate patient willing to hand them $thou...

Thank you for accepting that my arguments have some validity. That happens very rarely. I am a cardiologist practicing in Montreal with 30+ years experience including performing at least 10,000 angiograms. I have seen many patients with chronically elevated central venous pressure secondary to vario...

@cheerleader Those references are all concerned with blocked ARTERIES. They are are of no relevance to "CCSVI". There is no evidence of cerebral hypoxia in MS. To repeat, there is no way that blockage of neck veins could reduce blood flow only to white matter and not grey matter. It would ...

@cece MS is caused by a disease of the glial cells that form the myelin sheathes surrounding the axons. Even if this dysfunction had something to do with blood flow, it requires days if not weeks to regrow that myelin. Blocked internal jugular veins couldn't selectively reduce blood flow to the whit...

@happypoet
"CCSVI" is not based on science, it is surreal. We cannot hope to understand "CCSVI". It cannot be studied by the scientific method.