Search found 22 matches

by Salerdog
Fri Jul 22, 2011 11:10 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Albany stents - Type
Replies: 1
Views: 1279

Albany stents - Type

Help, can anyone tell me what type of stents Albany, Siskens group was using for jugs in September 2010. Need to know type to see if they can go thru an MRI.
by Salerdog
Mon May 30, 2011 9:25 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 2ND Time better results than the 1st Procedure???
Replies: 6
Views: 1815

Facebook Reply by Dayle Baich on May 27, 2011 at 9:58pm

i have had 2 procedures. With good results the first time, relief of many symptoms. These benefits only lasted 2months and at 6 moths back where I started so had 2nd procedure. This time had NO improvements. After 7 weeks now I have been progressively getting worse. Are now unable to care for my sel...
by Salerdog
Thu May 26, 2011 11:04 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 2ND Time better results than the 1st Procedure???
Replies: 6
Views: 1815

2ND Time better results than the 1st Procedure???

Anybody get better results from their second procedure compared to their first time. My Wife ended up worse than before she had her first procedure right from day 1, over 8 months ago. Strongly considering a second go around. Feedback would be very appreciated.
by Salerdog
Tue Apr 12, 2011 7:44 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: A request
Replies: 56
Views: 8439

BlueSky just want you to know that each and every day, warm thoughts and sincere wishes are being sent your way. Just for you for a successful recovery.
by Salerdog
Mon Apr 11, 2011 8:36 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Can not move legs after CCSVI
Replies: 21
Views: 5361

That sounds awful. :-( When you have hoped for improvement, and then to find yourself in this situation. Your wife is so fortunate to have you as her partner. (My spouse left after the MS dx.) I am going to say what I often say to people who suddenly get increased symptoms -- before you assume it's...
by Salerdog
Sun Apr 10, 2011 10:42 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I've decided to support the MS Society.
Replies: 28
Views: 4541

How about the MS society taking ownership of the CCSVI.ca url and trying to appear like they give a crap about CCSVI just before all the spring MS walks take place. Nothing more than a big political move to retain donations. Must be hurting!
by Salerdog
Mon Mar 21, 2011 6:10 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Can ultrasound see a clot?
Replies: 23
Views: 4368

D dimer blood test

Cece, Many thanks for the lead on the D-dimer test. My wife is on Coumadin and being tested every two wks to keep her level between 1 & 2, so we can throw this test in as they are collecting a blood sample anyway.
by Salerdog
Sat Mar 19, 2011 7:32 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Can not move legs after CCSVI
Replies: 21
Views: 5361

Rici, Thanks for your info, and I wish you good luck in the open operation to fix the diameter challenges of the right jugular. Bob
by Salerdog
Mon Mar 14, 2011 1:21 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Can not move legs after CCSVI
Replies: 21
Views: 5361

**deleted due to being rude and did not mean to be** I am very sorry for my harsh words. I did not mean any disrespect. Just opened my mouth and should have put my foot in it instead of being rude. I am sorry! You apology is a class act. We have all done similar things at times. (Actually, I should...
by Salerdog
Mon Mar 14, 2011 1:11 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Can not move legs after CCSVI
Replies: 21
Views: 5361

Cece thanks very much for the time you took with your reply. Very appreciated. Two stents in the left jug only. One is mid and the second lower. Done on Friday morning and by the following Monday morning they had clotted.(Excellent collateral drainage.) Suspect clot might have happened shortly after...
by Salerdog
Mon Mar 14, 2011 8:12 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Can not move legs after CCSVI
Replies: 21
Views: 5361

NOPE! Have you? I'm sorry this thread seems suspicious to me. Can you elaborate some? My wife Trish SMPS was liberated 24 Sept. Received 2 stents which clotted and have since cleared as she has flow, per Barrie vascular. Since she got off the table can not control her legs, can not turn over in bed...
by Salerdog
Sun Mar 13, 2011 11:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Can not move legs after CCSVI
Replies: 21
Views: 5361

Can not move legs after CCSVI

Has anyone lost the ability to move their legs after CCSVI and still not got the ability back after 6 months.
Also regain lost ability to transfer after CCSVI. (SPMS-do have flow)
Thanks, Bob
by Salerdog
Mon Jan 10, 2011 2:40 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Can Saunas be good for CCSVI?
Replies: 12
Views: 3089

My wife is Liberated, SMPS on Coumadin blood thinners. Always cold even with house temp at 23 Celsius or 74 Fahrenheit. Maybe sauna might help.
by Salerdog
Mon Jan 10, 2011 1:58 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Liberated Then Go Backwards then Improve
Replies: 2
Views: 1772

Liberated Then Go Backwards then Improve

Anyone had the CCSVI procedure and gotten worse than before procedure? Then as time has gone on have you started to see any improvements? (My wife has not restenosed, and does not have any current clots.) Still on Coumadin. Done Sept 24 2010 SPMS still not back to where she was when she got on the t...
by Salerdog
Sat Oct 30, 2010 9:37 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Warning. Women have a different blood clotting
Replies: 13
Views: 3391

Run the numbers. More women than men have MS. Is it any wonder statistically more of them are clotting?

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