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by bohemianbill
Fri May 27, 2011 4:01 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Canadians your Proxies are needed-time sensitive
Replies: 10
Views: 2838

Blaze, thankyou for the update on Chrystals thread, I figured it had already been posted i just couldn't find it. Esta, the proxy form needs to be printed (click onto the link than print), than you have to fill in the information by hand and make sure its signed. You than have to scan the filled in ...
by bohemianbill
Fri May 27, 2011 12:39 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Canadians your Proxies are needed-time sensitive
Replies: 10
Views: 2838

Esta this link worked okay for me, its the first link in the post, there may be others later on refering to the proxy that are broken. Thanks for the heads up and support

http://ccsvicoalition.org/wp-content/up ... 1_2011.pdf
by bohemianbill
Fri May 27, 2011 10:59 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Canadians your Proxies are needed-time sensitive
Replies: 10
Views: 2838

Canadians your Proxies are needed-time sensitive

The following has been posted on my Facebook and emailed to my contact list, we cannot afford another year of misinformation by the MSSC. please cut and paste to your circle. Thanks Bill & Laurie ------------------------------------------------------------ 1) read this email especially the highl...
by bohemianbill
Thu May 26, 2011 5:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Montel's announcement
Replies: 228
Views: 61055

THEGREEKFROMTHED wrote:Boy he's really going to play this one though isnt he? Just come out with it and tell us what the hell your going to do Montel! Stress exacerbates my symptoms.
its entertainment, lets hope Montel is ahead of the curve.
by bohemianbill
Sun May 15, 2011 5:52 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Time is Brain an incredible visual
Replies: 1
Views: 1903

Time is Brain an incredible visual

of the paradigm shift known as CCSVI. If you are having difficulty explaining CCSVI to those that are unaware may I suggest forwarding this link. Its been on YouTube for 11 months so I expect it has found its way to TIMS already (its new to me) yet only has 2966 hits. We all need to send this to our...
by bohemianbill
Sat May 14, 2011 6:14 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Court's Liberation - 2 Week Update (new vids)
Replies: 19
Views: 6321

One thing I believe is important to note in Courtney's case, is that she has lesions in both her spine and in the pons area of the brain. The one in the pons area is particularly suspect as it could very well be effecting the traffic of neurological signals to her legs. Its possible that an increase...
by bohemianbill
Mon May 09, 2011 6:54 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Laurie has been Liberated-Atlanta Access Care-Dr Sullivan
Replies: 9
Views: 3316

Our choice of Dr Sullivan in Atlanta was due to having family in Atlanta. I was not able to join her and needed a close friend to accompany her and her brother on the other end to take care of the logistics. So for Laurie it was a combination vacation, CCSVI Liberation, the latter was with hope and ...
by bohemianbill
Sun May 08, 2011 3:28 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Court's Liberation - 2 Week Update (new vids)
Replies: 19
Views: 6321

congrats JohnyMac to Courtney's Liberation and your obvious joy. My Laurie and I are sharing the same wonderment of her own Liberation in Atlanta on May 5. Hope springs eternal will forever be the month of May. Looking forward to sharing updates with Courtney and you.

Bill
by bohemianbill
Sun May 08, 2011 8:32 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Laurie has been Liberated-Atlanta Access Care-Dr Sullivan
Replies: 9
Views: 3316

Laurie has been Liberated-Atlanta Access Care-Dr Sullivan

(please feel free to send this testimonial to your 'letter to the editor') Seeing is believing, its important that the general public, those NOT directly touched by MS understand that fellow Canadians are suffering, needlessly. Its our hope that this shared testimonial will educate than motivate our...
by bohemianbill
Sat Jun 19, 2010 9:05 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Has anyone been liberated that is a primary progressive MSer
Replies: 22
Views: 6341

Esta, i had a puter problem and I lost a lot of information/email, so your email must have been during all that. Thank you so much for responding again. It seems a lot of people re stenose, are we able to insist on a stent rather than plasty, its not only the money its the wear and tear on her. (I a...
by bohemianbill
Sat Jun 19, 2010 8:49 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Has anyone been liberated that is a primary progressive MSer
Replies: 22
Views: 6341

Thank you

L I am sorry for your position. Laurie was diagnosed in 1990 and ended up in a wheel chair in 1998. Gradual but steady downhill progression. The Liberation puts us both back on offense, the last 3 years has been more of an exsistance rather than living life. It was exciting watching the video's of D...
by bohemianbill
Sat Jun 19, 2010 5:22 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Has anyone been liberated that is a primary progressive MSer
Replies: 22
Views: 6341

Has anyone been liberated that is a primary progressive MSer

Hi everyone, Like many of you WE have received an invite to Katowice so that my dear wife can be tested and treated for CCSVI. My question is after reading all the testimonials I have not read one that compares to Lauries 7.5-8 on the MS scale. Laurie no longer has use of her legs, upper body is str...
by bohemianbill
Sun Apr 04, 2010 12:31 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: "I worry that the money is so great," he said, tha
Replies: 5
Views: 3108

This was my BUMP
by bohemianbill
Sun Apr 04, 2010 10:35 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Class Action Law Suit
Replies: 38
Views: 10555

Clarifying my thoughts :)

I need to clarify my thoughts on why I originally started this thread. To say I am skeptical that CCSVI research is going to obtain the money and develop the protocol rigors required for the scientific community to actually make conclusions in its relationship to MS are years possible decades off is...
by bohemianbill
Sat Apr 03, 2010 6:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Class Action Law Suit
Replies: 38
Views: 10555

Ozark, this is a Canadian issue, we are the land of socialized medicine, if you are sick it is our Governments (federal and provincial) and the Health Ministry of Canada responsibility to diagnose and treat. For your information I personally have been sent stateside for a procedure not readily avail...

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