This Is MS Multiple Sclerosis Knowledge & Support Community

Johnson,

Hoping to hear great news from you. Best wishes for a great outcome. Your in good hands.
Hope The Doctor (the dogs name) let you get your rest.
Looking forward to hearing your glowing reports.
Stephen

Hi Zeureka, I hope your migrane and burning neck/chest are only related to the weather. Is the pain in your neck on the side they balooned or a general all over pain? I have finished my blood thinner injections and did not seem to have any problems with them. It sounds like you have not had much tim...

The brachiocephalic trunk is also a vein, below the jugulars, that leads to the V. cava superior. http://en.wikipedia.org/wiki/File:Venenwinkel.png They balooned the lower jugular and B.trunk but the trunck did not stay open and the restriction is causing the blood to reflux up the jugular and throu...

I want to hear more aobut your experience comfortably numb ( i like that name)..so you got a negative from Simka? Not many of tos available when you're batting 95%... I didn't get a negative but there was nothing they could do since the angioplasty didn't hold and they can't stent the Brachiocephal...

Sorry that you didn't find what you were looking for. I hope you find some answers at home. I also still have to get answers here at home since they were not able to fix the CCSVI problem in poland. I was also at Euromedic the same time you were with Kosteci and 3 of us had the procedure the day bef...

Badger,

That's great news. I wish you plenty of sunshine(vitamin D ) and many more improvements.
Cheers.
Stephen

Hi Eric, The laboratory tests they list are: White & red blood count, haemoglobin, platelet count, INR(International Normalized Ratio), aPPT (bleeding tendencies), Na+(sodium), K+(potassium),Cl(chloride), Glucose, creatinine(kidney function), HBs (hepatitis B surface antibody) and Rh (bloodtype)...

Hi all, I am home from Poland now and missing all the great people we met there. I am feeling good and have no discomfort except for the itch from hair growing back from shaved areas 8O. The group at Euro Medic really have their act together. We missed our connecting flight in Munich, on the fight t...

I had my procedure and I did lose some of the numbness in my right hand(my least numb extremity) and the colour seems to be better. Feel good after the surgery. They did an angioplasy of the left jugular and the brachiocephalic trunk. But they couldn't stent the brachiocephalic trunk because it is t...

I Stephen! I just received news from Eromedic, i will be there for the 19 of june! I can understand how you are feeling now;) We will be happy to ear from you while you are there... and follow your polish adventure! Can you tel me with wich line (plane ) are you flying? Barbara Hi Barbara, We are f...

Well the time has finally come around and our flight leaves this evening getting us to Poland around lunch tommorow. :D :D It's hard to believe since it's been in the works since December. I want to thank everyone on TIM's for your sharing of thoughts and information which has made this all possible...

Badger, Great to hear your feeling great and still finding improvements. :D Could you raise your foot from the heal before your procedure or was that one of your MS symptoms? I cannot raise my left foot from the heal at all, just wiggle my toes. My Physio was using a electro muscle stimulator while ...

Would you fancy some Italian CCSVI hats and T-shirts to celebrate? The hats and T-shirts sound like a great idea. :D Maybe we should also make a big sign "TIMS members meet HERE --> ". You know, at some local bar or something. Otherwise I will be stalking anybody with a limp / cane / whee...

I just realised 26 May is "World MS day" ! http://www.msif.org/en/get_involved/world_ms_day_2010/index.html What a coincidence - my procedure scheduled for the 26 !!! ;-) What a great way to be celebrating world MS day! Can't wait to see you there and help you celebrate. :D :D :D I am get...

Typical reaction for a neurologist. It shows that he is more intrested in keeping the drug companies happy than his patients. During my diagnosis in 2000 my first neurologist was against the drugs and did not recommend them. He went against what I read from and heard that you need to get on the drug...