Search found 6 matches

by Jasmine
Sat Jan 30, 2010 3:23 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Inclined Bed Therapy
Replies: 832
Views: 270618

Hi I just wanted to feed back on my IT experience. I tilted my bed last weekend, and find it very comfortable. In fact I'm not really aware of it being at an angle. I can't comment on effects to my sleep since I take LDN and so sleep very well any way. I think I've had less vibrations down my legs b...
by Jasmine
Mon Jan 25, 2010 2:35 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: A Postural Connection With MS? Please Answer Poll Questions
Replies: 76
Views: 33829

I am completely confused by all of this. In the questionnaire of when symptoms come on, I felt they had to be following sitting, or standing, or rising to standing or lying as this is all people do in their day to day lives. When I look back at my own relapses, there was definately no pattern to sym...
by Jasmine
Mon Nov 30, 2009 10:16 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: what does everyone think of this?
Replies: 3
Views: 2331

what does everyone think of this?

I was just given this info from a Consultant radiologist in the uk on ccsvi: "I am suspicious of the syndrome. Anyone with heart failure, pericardial constriction or superior vena cave obstruction would have restriction of venous return and yet no neurological symptoms occur. Also the azygos ve...
by Jasmine
Sun Nov 29, 2009 11:53 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Paying for CCSVI
Replies: 4
Views: 2410

Thankyou. I have read quite alot about it and am aware of all the risks. Interestingly, my dad had stent put in his veins years ago 9different weins though as this was for angina) but it does make me think if I have soe hereditory vein insufficiency thing going in. I so want to have the tests for th...
by Jasmine
Sun Nov 29, 2009 11:33 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Known Risks/Complications of Angioplasty and Venous Stenting
Replies: 129
Views: 173451

I just wondered where your husband managed to get his stent surgery? Do you live in the US? I am in the UK but so want to be investigated for this. Do you know how I can? Thanks
by Jasmine
Sun Nov 29, 2009 11:29 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Paying for CCSVI
Replies: 4
Views: 2410

Paying for CCSVI

H, I'm new on here but was wondering if it is possible to go to Europe and be investigated and treated for the ccsvi? If so where do you go and who to see. Is it Poland?

Thankyou 8O

Go to advanced search