This Is MS Multiple Sclerosis Knowledge & Support Community

Hey Claire and Kevin!
All is good here, my clots are being treated with warfarin, which isnt too bad.
Working hard with my physio so hopefully should be gaining strength...
I hope you and Iza are making progress and more importantly enjoying life!
Take care guys
xia

Hi Claire!
I hope you eventually got a good outcome from your visit to Poland. Let us know how you are doing...
I hope Iza is doing well too.
Take care
xia x

Hi, I hope you are doing well. I too have the same problem at the moment. My last scan in July showed in stent thombosis and I have been put on Warfarin. I contacted Dr Simka to let him know what my vascular consultant said and he replied saying that it might not be a clot but something called intim...

I thought I would let you know that I had my first appoint with the vascular consultant today after Poland. He was very pleased to see me and eager to know how I was and the details of Poland. He has not had a chance to review my scans and op yet due to being stuck in Canada but he has informed me t...

It has been a while since I last wrote about my progress with the NHS but there has been a development today. I went for my Dopplar Ultrasound at the vascular study dept. It seemed like a waste of time as I have already had the problem fixed in Poland... I went armed with all my results and CDs with...

Hey Kevin and Iza, Hope you are both well. I hope things are continuing to improve :) I am now able to take a few steps unaided but it looks like I'm drunk!! Still its a start :) I hope Iza gets to dance to aarons CD soon, what did you think of it? Off for a scan tomorrow, managed to get a vascular ...

hi Mooch Sorry to hear about your journey home, but its great to hear about Isa's improvements so far. Her improvements sound very similar to mine. ;) It was great to meet you both and im very interested to hear how Isa gets on in the future. About the doppler scan... It seems that the mrv results w...

Hi, Got back from Poland on Sunday, what an experience! They found my left internal was completely collapsed and ballooning was not effective so they fitted a stent and ballooned below it which increased flow but it was too close to the main artery so they had to move the vein to the side! There was...

Hi Claire, I hope this finds you resting up and feeling positive :) It was great to meet you out in Poland, it helps meeting like minded people. Since getting back I needed to catch up on some much needed sleep and the stents are still quite painful! My improvements are small and I too feel set back...

See you there Xia. I'm flying out tomorrow. All the best Claire! See you soon... :) Hi brightspot, I will have to dig out the links I found the info from. My vascular surgeon didnt want simple handouts he wanted proper medical papers! What I found seemed to do the trick. There are some papers here....

Hi all. I am now due to fly out to Poland in a few days, can't believe how quickly its come round! I have spoken to the vascular study radiologist I was referred to and she is very excited and interested in doing the necessary scans correctly. She has schooled herself up on the protocols and is eage...

Its a shame but I will be flying out on 29th!
Will just have missed you!
Looking forward to reading your updates...

Take care
xia

All the best in Poland Nigel!
xia

Hi Mark,
Thanks for the insight, not good news but a much needed reality check for me.
Hopefully one day things will start happening over here in the UK, after all thats what we pay our taxes for...
regards
xia

I'll be flying in on 29th to Katowice airport, should be there by mid afternoon.
So how are we all going to know its us?
I use 2 sticks and may be in a red framed wheel chair...

xia