Search found 7 matches
- Fri Dec 04, 2009 4:08 am
- Forum: Tysabri (Antegren, Natalizumab)
- Topic: JC VIRUS TEST - HOW DO YOU GET IT?
- Replies: 21
- Views: 18348
My neurologist has talked about similar change in timing of infusions. The problem is there is no data to suggest what would come of stretching the time between infusions. I don't know about you, but my body starts to feel different about 5 days before I am scheduled for the next infusion. We have w...
- Thu Dec 03, 2009 4:55 am
- Forum: Tysabri (Antegren, Natalizumab)
- Topic: JC VIRUS TEST - HOW DO YOU GET IT?
- Replies: 21
- Views: 18348
- Wed Dec 02, 2009 5:21 am
- Forum: Tysabri (Antegren, Natalizumab)
- Topic: JC VIRUS TEST - HOW DO YOU GET IT?
- Replies: 21
- Views: 18348
You now have me thinking: if my CD4 count fell below 400, I would assume I would be sick in other ways??? If TOUCH is supposed to be monitoring this why can't I find it on any of my blood work? Also I am not routinely testing my blood only answering the questions before I start, BP and temp and maki...
- Wed Dec 02, 2009 5:06 am
- Forum: Tysabri (Antegren, Natalizumab)
- Topic: JC VIRUS TEST - HOW DO YOU GET IT?
- Replies: 21
- Views: 18348
- Tue Dec 01, 2009 5:10 pm
- Forum: Tysabri (Antegren, Natalizumab)
- Topic: insurance
- Replies: 7
- Views: 3819
Loobie, Same situation. Insurance started in April (COBRA) and I needed to meet a $4000 deductible. After that and one infusion, all is covered. Mind you that was not even 1 year. Our clock resets in January and COBRA will expire in June. So once again, $4000 in six months and a new policy will star...
- Tue Dec 01, 2009 5:01 pm
- Forum: Tysabri (Antegren, Natalizumab)
- Topic: JC VIRUS TEST - HOW DO YOU GET IT?
- Replies: 21
- Views: 18348
John, I have read all of those articles as well. You sum up the information very well. I am on infusion #30 on Monday and worry everyday about developing PML with every infusion. I have asked my neurologist repeatedly about being tested for the JC Virus. His response has always been that when there ...
- Tue Dec 01, 2009 4:52 pm
- Forum: Tysabri (Antegren, Natalizumab)
- Topic: Panel of MS experts provides best practice for Tysabri
- Replies: 4
- Views: 2962
Re: Panel of MS experts provides best practice for Tysabri
I was so excited to hear that these reports had been published today and the articles are available for download for free. That is very unusual. For all of my excitement, I was very disappointed in what the articles had to say. I am treated at a very active MS center in the area where I live and the...