Search found 975 matches

by Johnson
Tue Sep 27, 2011 4:08 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: E-Mail Blitz to CDN Senators - Sept. 26, 2011
Replies: 20
Views: 2663

Re: E-Mail Blitz to CDN Senators - Sept. 26, 2011

here's one of my replies I rather find offensive... I am writing to respond to your email and express my thoughts. ...blah, blah, blah... Thanks for expressing your views. Coincidentally, I have received many other emails with the same text. Yours truly, Dennis Patterson Senator for Nunavut Coincid...
by Johnson
Sat Aug 20, 2011 12:04 am
Forum: General Discussion
Topic: Low body temperature - MS related or just a quirk?
Replies: 42
Views: 22709

I too have a lower body temperature, and I sweat if I sleep with much cover. My resting heart rate is about 50 bpm , sometimes less, BP 112/65 after a triple espresso...

Sometimes I feel like Perry Como.
by Johnson
Fri Aug 12, 2011 12:33 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: What's not being said?
Replies: 37
Views: 3772

While not stellar, I have had results that last, and are marginally remarksble. I do not post about it because; a) The vagaries of life permit me little time to read here, let alone write. It has been weeks without Interwbbiness access for me. b) I think it is a constellation of afflictions, and I a...
by Johnson
Fri Jul 29, 2011 3:36 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: one year ago today: very brief note :-)
Replies: 25
Views: 3713

Thank you bluesky. It is nicer than nice to hear from you. Inimitable!
by Johnson
Thu Jul 21, 2011 5:07 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Frohman and Normal Pressure Hydrocephalus
Replies: 108
Views: 16997

... Will this excess CSF show up on MRI? What is the quantification? How do we know if this is occurring in an MS brain? Neurologists insist NPH has nothing to do with MS....what is their evidence? What could be our evidence? Your welcome Cheerleader, Aside from enlargement of the ventricles called...
by Johnson
Thu Jul 21, 2011 3:20 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: measurement of azygous blood flow
Replies: 5
Views: 1583

---redacted--- Canadians may be screwed at the moment (and for the last two years) but with the federal trials beginning, it is not going to last forever. Joan mentioned this at her Facebook page, but I have not seen it here. I have (and had) little confidence in the announcement. I've been Canadia...
by Johnson
Thu Jul 14, 2011 3:05 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 2nd Annual CCSVI Symposium in NYC July 15-17
Replies: 158
Views: 23377

Man, I wish that I could be there.

Have fun for me!
by Johnson
Thu Jul 14, 2011 2:50 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Does tinnitus improve following CCSVI treatment?
Replies: 5
Views: 2065

Mine changed - perhaps slightly diminished (PTA 3 times), but I still have it. It did used to be three simultaneous tones ranging between 6 tones, but seems to be down to one tone at once, varying between two different tones. I am completely deaf in the ringing ear (how weird is that?). I am investi...
by Johnson
Mon Jul 11, 2011 12:33 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Here's an interesting kettle of fish.
Replies: 10
Views: 1621

Well I must admit there is one interesting finding from this study; "the lesions are not the disease". ...but the first thing that comes to mind is that something else is doing the damage . The lesions are only the body's normal response to injury. What do you think? My last MRI (2010) revealed no ...
by Johnson
Sun Jul 10, 2011 10:27 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 118579

All the best to you manana, Cece.
by Johnson
Sat Jul 09, 2011 11:57 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Weird eye symptoms? Help?
Replies: 77
Views: 7874

(I used to have a diesel car that would start running on its crankcase oil)... I had one of those too! A 79 Diesel Rabbit (bullet proof car that would run on its own crankcase oil!). The acceleration seemed infinite, and I had to stand on the brakes in 4th gear to stall it out - even with the ignit...
by Johnson
Thu Jul 07, 2011 8:12 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Diarrhea and Post CCSVI procedure?
Replies: 2
Views: 1570

Hello Gardinia,

So, having the procedure did not help with the hand tremours, but induced diarrhea? Weird. Where were you treated, and by whom? What was done?
by Johnson
Thu Jul 07, 2011 8:02 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Zinamaria'a procedure in Minneapolis
Replies: 30
Views: 5102

Yay for zina!

I am very pleased to read of your renewed vigour, and heat tolerance.

Don't forget the salt with all of that agua.
by Johnson
Thu Jul 07, 2011 7:14 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Medical tourism site using PMs.
Replies: 20
Views: 3605

---redacted--- i just chose to stay here and write a lot of answers and put together a couple of international meetings, and join and develop a new network of physicians who are treating. Any way, i am sure that we are developing traction and that ccsvi is going to be mainstream in 12-18 months Tha...
by Johnson
Tue Jul 05, 2011 9:29 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1598800

!,,,