Search found 67 matches

by mrsilkykat
Tue Mar 27, 2012 6:50 pm
Forum: Medical Devices
Topic: Oral Systemic Balance
Replies: 0
Views: 2174

Oral Systemic Balance

Has anyone had experience with Oral Systemic Balance? It's a patented oral orthotic developed by a dentist in Tacoma Washington that, according to some anecdotes, has been effective in treating MS symptoms.
by mrsilkykat
Sat Nov 27, 2010 12:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: It's about time, Dr. Sclafani
Replies: 33
Views: 9282

Like others, I had tears of joy. I am thrilled and hopeful once again.

However, I can't find the original announcement from Dr. Sclafani. Where should I look?
by mrsilkykat
Thu May 06, 2010 9:50 am
Forum: Avonex
Topic: New Blood Test Predicts Who Will Benefit From Interferons
Replies: 8
Views: 8236

JJ, I wish I could definitely answer your questions. If I were on the Interferons or thinking about them, I would most definitely pursue this. It sounds like the blood test is available although it also sounds like Teva is still developing a test. If your neuro isn't helpful, I would get in touch wi...
by mrsilkykat
Wed May 05, 2010 6:51 pm
Forum: Avonex
Topic: New Blood Test Predicts Who Will Benefit From Interferons
Replies: 8
Views: 8236

JJ, I only know what I posted from Bloomberg News. From what I read there, it's available. If I were you I would bring this to my neurologist and ask for the test. See what he/she says. I'm on Tysabri, so this doesn't affect me. But I'll bring the paper tomorrow when I go for my infusion and leave i...
by mrsilkykat
Wed Apr 14, 2010 3:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Georgetown U - requires NEURO referral?
Replies: 8
Views: 1874

Liber8

Can you post the site that explains their procedure, please.

Thanks.
by mrsilkykat
Mon Apr 12, 2010 3:13 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Georgetown U - requires NEURO referral?
Replies: 8
Views: 1874

Is Georgetown accepting patients for TESTING AND TREATMENT? Or just testing?

I called last month but have not heard from them.
by mrsilkykat
Sun Apr 11, 2010 5:22 pm
Forum: Betaseron
Topic: New Blood Test Predicts Who Will Benefit From Interferons
Replies: 1
Views: 4686

New Blood Test Predicts Who Will Benefit From Interferons

Posted: Sun Apr 11, 2010 5:18 pm Post subject: New Blood Test Predicts Who Will Benefit From Interferons -------------------------------------------------------------------------------- A simple blood test is now available to predict who will and who will not benefit by using Interferons. No more gu...
by mrsilkykat
Sun Apr 11, 2010 5:18 pm
Forum: Rebif
Topic: New Blood Test Predicts Who Will Benefit From Interferons
Replies: 1
Views: 4480

New Blood Test Predicts Who Will Benefit From Interferons

A simple blood test is now available to predict who will and who will not benefit by using Interferons. No more guess work. No more trying to figure out will it work for me, which one will work, is it working or not. Ask your neurologist about this. The underlines are mine. It's pretty extraordinary...
by mrsilkykat
Sun Apr 11, 2010 5:15 pm
Forum: Avonex
Topic: New Blood Test Predicts Who Will Benefit From Interferons
Replies: 8
Views: 8236

New Blood Test Predicts Who Will Benefit From Interferons

A simple blood test is now available to predict who will and who will not benefit by using Interferons. No more guess work. No more trying to figure out will it work for me, which one will work, is it working or not. Ask your neurologist about this. The underlines are mine. It's pretty extraordinary...
by mrsilkykat
Mon Apr 05, 2010 4:29 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is there a big seminar later this month in the US?
Replies: 5
Views: 1967

Can the webcast be accessed at any time or must we view it live?
by mrsilkykat
Mon Apr 05, 2010 4:15 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: use of neck MRV in dx CCSVI
Replies: 12
Views: 3394

comparing MRV with DS & SV

Questions about the study comparing MRV, DS & SV that eric posted: What is PPV? What is NPV? Sensitivity? Specificity? Accuracy? It looks like it's a waste of money to get an MRV. Yet, Dake went from MRV directly to venography and treatment. MRVs are expensive and from this very small study possibly...
by mrsilkykat
Mon Apr 05, 2010 4:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: never mind-
Replies: 25
Views: 4458

Cheer,

What does that mean, "nevermind". You said what needs to be said. What's with "nevermind".
by mrsilkykat
Tue Mar 30, 2010 1:16 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Not So Funny
Replies: 8
Views: 1795

I'm so glad someone posted this cartoon. I have it on my frig. This isn't even just Pharma, these are the little researchers on grants. Pharma, researchers, neuros. The list grows. I love it!!
by mrsilkykat
Sun Mar 28, 2010 4:41 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: Rebound Effect - Is it real?
Replies: 11
Views: 4228

I should add that when I went off Tysabri the first time, there was no rebound effect on MRI, only in my disability. I haven't had an MRI yet for this "holiday".
by mrsilkykat
Sun Mar 28, 2010 4:28 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: Rebound Effect - Is it real?
Replies: 11
Views: 4228

I can't say anything about the science of the rebound effect. I can only relate to you my single experience. I was on Tysabri for 12 months, went on "drug holiday" at neuro's insistence, felt great for 3 months, had an exacerbation in 4th month (not too bad), went back on after 6 months. I have now ...