Search found 27 matches

by jozee
Sun Feb 13, 2011 8:13 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 189281

Congratulations Cece!!!
Enjoy the clarity and brightness of colours. I experienced this as well. It was very emotional and is again reading your experience.
Rest, and hydrate.

Thankyou to Dr. S for all that you have done and do for us. You are a shinning light in all of our lives.

Jozee
by jozee
Fri Feb 11, 2011 2:12 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 189281

Good luck Cece!!!
by jozee
Thu Feb 03, 2011 11:20 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Feedback Barometric pressure
Replies: 8
Views: 3504

weather rules my life. Extreme heat and cold are impossible for me . When the weather change is extreme I fall down alot. MS symptoms are balance and lower body weakness mostly. In the morning I'm normal and by 11a.m. I'm a wobbling mess. Around 8 or 9 p.m. my balance improves. This started when I w...
by jozee
Fri Jan 28, 2011 7:08 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 189281

Cece,

So happy for you!!!

Jozee
by jozee
Thu Jan 06, 2011 8:05 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Angela has PML...
Replies: 51
Views: 16244

Stay strong Angela.
by jozee
Tue Jan 04, 2011 8:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani ASKS a question
Replies: 109
Views: 32522

Haven't been here in awhile...I'm finding this thread theraputic.

I experience a disconect between my upper body and my lower body. It feels like there is a piece of the puzzle missing.

Thanks for all that you do Dr. S.

Jozee
by jozee
Fri Nov 26, 2010 12:54 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: THANKSGIVING
Replies: 43
Views: 10940

Happy Thanksgiving

Congratulations Dr. S...Happy Thanksgiving!

Jozee
by jozee
Mon Jul 05, 2010 6:02 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Katowice, Poland: Good, Bad & Ugly
Replies: 27
Views: 7430

Hi Colmnc, How are you? I'm doing o'kay. I'm worried I may have restenosed. It's been extremely hot and humid here. Everyone feels lousy in this weather. We really enjoyed meeting you and Debra and all the others. Hi Pam, Sorry we missed connecting with you in Poland. I was also in the group before ...
by jozee
Fri Jun 18, 2010 8:15 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Katowice, Poland pre-trip checklist
Replies: 2
Views: 2361

Pam,thanks for sharing -great list.

Jozee
by jozee
Wed Jun 16, 2010 6:49 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Going to Katowice, Poland from June 23-30
Replies: 47
Views: 13940

Hi everyone,

D-mannose and cranberry pills..will be packing. Pam will you send me your list as well. Starting to think this is actually going to happen. It's very surreal.


Jozee
by jozee
Mon Jun 14, 2010 2:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Going to Katowice, Poland from June 23-30
Replies: 47
Views: 13940

Hi everybody,

I'm coming too. Arrive on the 21st with my hubby. Look forward to meeting everyone.

Jozee
by jozee
Tue May 18, 2010 9:59 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Thyroid veins
Replies: 41
Views: 10598

I've also wondered about vit. D and how it figures into the ccsvi equation. Absorbed by the skin from the sun and also from diet and then transported through blood to organs. I know, very simplistic. From a family of 5 siblings- we all spent similar times in the outdoors, ate the same food and I'm t...
by jozee
Fri May 14, 2010 6:05 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Mcdonald speech-Parliament Hearing
Replies: 32
Views: 10318

E-mail to Parliamentary Sub Committee

E-mail sent by my hubby and I is below: Dear Ms. Holke, I am writing to you to ask that the Parliamentary Sub Committee on Neurological Health Care immediately address the issue of denial of access to treatment for patients suffering from Chronic Cerebral Spinal Venous Insufficiency, or CCSVI. Patie...
by jozee
Sat Apr 17, 2010 9:46 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Media Weblink. CCSVI link to THALAMUS?
Replies: 13
Views: 3959

NZer1,

Great info on the thalamus. Is there a vascular connection with the thalamus?

Jozee
by jozee
Thu Apr 15, 2010 8:12 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Media Weblink. CCSVI link to THALAMUS?
Replies: 13
Views: 3959

The pieces of my personal puzzle are starting to fit. At age 17 I became ill with severe headache, vomiting, doublevision, lack of co-ordination, and facial paralysis. These are the symptoms of a Thalamus Stroke. I spent 3 months in hospital recovering. Learning to walk, speak and eye surgery to cor...

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