Search found 179 matches

by Katie41
Fri Sep 23, 2011 5:30 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Pregnancy after CCSVI stenting
Replies: 3
Views: 1223

Re: Pregnancy after CCSVI stenting

My daughter has two jugular stents, placed 1 1/2 years ago in Poland. She recently had her 1st baby: natural childbirth; no drugs; uneventful pregnancy; very healthy, alert, strong baby boy 8lb. 15 oz.; went home the next morning. We convinced the hospital to treat her as a low risk birth. This took...
by Katie41
Mon Feb 21, 2011 4:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Dake's study not beginning yet
Replies: 26
Views: 4553

It's difficult not being able to do what you were destined to do! So happy for Dr. Dake that he has finally gotten the go-ahead! And, happy for all the people who will benefit from his expertise. One year ago, I took a giant leap of faith and went to Katowice, Poland for the CCSVI procedure, after h...
by Katie41
Thu Feb 17, 2011 5:37 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: HyperBaric Oxygen Therapy good for CCSVI Patients?
Replies: 21
Views: 5455

I did 5 treatments a week for two months. It really helped short-term; but, my son-in-law's step-mother did it over 15 years ago and went into remission. She has never had any symptoms since. Don't know why that worked that way for her.
by Katie41
Wed Feb 16, 2011 5:56 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 119655

A little late to the "party", I am! So excited for you Cece! :D I have often marveled at your quick grasp of any new CCSVI info and your ability to ask the logical questions and then explain it so we all can grasp it. It's so wonderful that you can now benefit from this wonderful gift that Dr. Sclaf...
by Katie41
Wed Feb 16, 2011 5:43 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: HyperBaric Oxygen Therapy good for CCSVI Patients?
Replies: 21
Views: 5455

Hi, I did hyperbaric therapy for two months, 8 months prior to having the CCSVI procedure. It helped some symptoms abate for up to 4 months, and others for a few minutes. The many symptoms that improved, convinced me that CCSVI was for real when I first heard about it. I knew about how much I would ...
by Katie41
Sat Jan 29, 2011 11:21 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I now have no symptoms
Replies: 13
Views: 3130

Fantastic!!!!! I'm so very happy for you!
by Katie41
Tue Jan 11, 2011 5:27 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Euromedic Poland and the Azygous vein - please help!
Replies: 17
Views: 4490

Last March, Dr. Simka and Dr. Ludka checked and ballooned my azygos vein in two places. Both places have stayed open for the past 9 1/2 months.
by Katie41
Sun Jan 02, 2011 7:48 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Makris' 1st CCSVI Procedure-28 Dec 2010
Replies: 86
Views: 17845

Fantastic! I'm so glad to hear that you've been able to get treatment so close to you. Great sound, that POP! I had the same thing when I was treated by Dr. Arata in Southern CA and have not restenosed in 5 1/2 months! All the new information gleaned from those who have had this procedure and the sh...
by Katie41
Fri Dec 31, 2010 5:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: HAPPY NEW YEAR
Replies: 12
Views: 2067

Happy, Happy New Year to everyone! Thank you to all the very hard working, pioneering doctors who have supported, researched, and treated CCSVI this year. Thanks to all of you who have provided so many answers, along with great, thought-provoking questions. Thanks especially to Cheer for "putting it...
by Katie41
Mon Dec 20, 2010 1:41 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Notes from CureIous' at Stanford
Replies: 352
Views: 67989

Congratulations! Great job! It is so nice to be "normal"! Have a lovely "average" Christmas, with your "everyday" abilities. Love getting "better" with age, really.
by Katie41
Fri Nov 12, 2010 3:47 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: blocked stent question - w a r n i n g !
Replies: 54
Views: 14403

Hi Badger,

I'll be thinking good thoughts for you on Monday!!! Say hi to Dr. Ludyga, Dr. Simka, Grzeory (Greg), and Marta for me.

Love,
Katie
by Katie41
Sat Nov 06, 2010 7:52 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: AlmostClever is Liberated!
Replies: 23
Views: 5341

Great post! Congratulations! I agree with you re MT. Sounds like you found a gem of a doctor! Great job!
by Katie41
Sat Sep 25, 2010 11:45 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: A May Thurner Question & Euromedic (Poland)
Replies: 13
Views: 2877

Thanks, Cece. Great info. I love how the pieces come together on this site. Joan created something so special when she created this.
by Katie41
Sat Sep 25, 2010 11:10 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: A May Thurner Question & Euromedic (Poland)
Replies: 13
Views: 2877

Oops! Sorry. I think I didn't type anything in the subject line. Anyway, a better explanation of the "bottom line" of MT and why it should be treated regardless of symptoms or no symptoms is on the "Dr.Sclafani answers some questions" thread. The poster is Nunzio, on Sept. 25, 9:43 a.m.. With CCSVI ...
by Katie41
Fri Sep 24, 2010 4:02 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: A May Thurner Question & Euromedic (Poland)
Replies: 13
Views: 2877

Interrupted, check your private mail.