Search found 13 matches

by notadoc
Fri Dec 28, 2012 7:02 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2388735

Re: DrSclafani answers some questions

http://www.erinelster.com/files/jvsr%20ms%20and%20pd%2081.pdf I was one of the subjects in this study by Dr. Elster. I do not agree that my problems should be attributed to the disagreement I had with that horse many years ago, but I do strongly support the hypothesis that the misaligned C1/C2 was i...
by notadoc
Mon Nov 15, 2010 5:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Rocky Mountain MS Center soliciting responses
Replies: 5
Views: 2328

Rocky Mountain MS Center soliciting responses

Published in the Nov 14 Denver Post and on their web page is a request to participate in a survey about how they can better serve us. If you are in the Rocky Mountain region, or perhaps even if you are not, please tell them what you think at http://www.mscenter.org.
by notadoc
Tue Oct 05, 2010 6:21 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 205854

I had angioplasty yesterday at the Arizona Heart Institute in Phoenix. It was an entirely positive experience for me as they treated five different locations. Staff was extremely efficient and competent, and the treatment was everything I could have expected. They told me I was patient 30 and their ...
by notadoc
Wed Sep 22, 2010 11:40 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: What is the fastest way to get CCSVI testing for a US cit.?
Replies: 11
Views: 2459

Not exactly northeast, but Georgetown University Hospital does extracranial doppler for a very reasonable price, $450 I believe. They cannot look at the azygous with doppler, but they found stenosis and reflux in me. Armed with that information then I went looking for somewhere for treatment.
by notadoc
Tue Sep 21, 2010 6:52 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 205854

Arizona Heart Institute, Venous Insufficiency Program. There has been very little posted here about this treatment opportunity. Some concern has been expressed based on their filing for bankruptcy and being bought by a much larger company. I am not especially concerned about that as bankruptcy bring...
by notadoc
Sun Sep 12, 2010 7:30 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I`m Sorry
Replies: 11
Views: 2744

Pushing an empty wheelchair for Holly is a wonderful idea, which gave me another idea. Now I wonder if people could push empty wheelchairs of those no longer needed by people who have been liberated; Liberated both from CCSVI and liberated from the wheelchair. This could be a great way to spread the...
by notadoc
Thu Aug 19, 2010 7:16 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Phoenix Arizona Applicant Package Venous Impairment Program
Replies: 8
Views: 3242

The cover letter that I received yesterday from LifeGuard states:

"If intervention is indicated, you will have the option to schedule your procedure for the next working day (Monday-Friday only)."

I understand this to mean that both testing and treatment are available.
by notadoc
Thu Jul 15, 2010 8:05 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Zivadinov’s "mini" interview
Replies: 10
Views: 2599

I think the implication is clear. Even the broadest interpretation accounts for one death, not multiple.

I expect that eventually a liberated patient will die from cancer, a traffic accident, or any other cause. It will be equally misleading to associate that death with the liberation treatment.
by notadoc
Thu Jul 15, 2010 6:54 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Zivadinov’s "mini" interview
Replies: 10
Views: 2599

I am disappointed that he provided this incorrect statement that may discourage people from seeking liberation. One California patient did die after treatment, but all of the evidence I have seen says her death was related to the blood thinners and not the treatment itself. The patient whose stent d...
by notadoc
Thu Jul 08, 2010 11:36 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI tracking project-POST PER P.1 FORMAT ONLY
Replies: 163
Views: 348091

CCSVI Tracking Project

Male/Female: (M/F): M Age: 61 Date(s) & type of neurological diagnosis (RRMS, SPMS, PPMS, CIS, or other): 2001 RRMS Lesion locations (most affected side, if known), number: Right, unknown number MS treatments: Rebif for 3 months. Stopped because of side effects MS symptoms before stenosis interv...
by notadoc
Mon May 24, 2010 5:29 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cervical Reason for CCSVI
Replies: 26
Views: 7630

Upper Cervical specialists and Dr. Elster

I have been a patient of Dr. Elster for several years and I have to give her the full credit for allowing me to function over that time. When I tried to tell my neuros about the immediate symptom relief from upper cervical treatment they assured me that was impossible. Maybe some coincidence or plac...
by notadoc
Fri Apr 23, 2010 2:41 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: What are the magic words to the doctor?
Replies: 1
Views: 1900

What are the magic words to the doctor?

I have completely struck out in trying to find someone qualified and willing to do the Liberation Treatment in Colorado. I understand that when I say "MS" they think "neurologist." When I say "CCSVI" they think "radical", "experimental", "danger...
by notadoc
Tue Mar 09, 2010 7:13 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: posture & CCSVI
Replies: 27
Views: 9612

Upper Cervical specialists

Extreme newby here after months of lurking and learning. My first symptoms came immediately after spending several hours looking to the right and down out of an airplane window on a search and rescue mission. A very sharp chiropractor discovered that C1 and C2 were misaligned and gradually realigned...

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