Search found 59 matches
- Thu Jul 15, 2010 7:39 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Post if CCSVI treatment did NOT work for you
- Replies: 339
- Views: 243850
Hello all I had the procedure done in Katowice, February this year....was diagnosed by Dr Simka with blockage in the azygous and right jugular veins....Given I am SSPS, I was not expecting miracles and was not surprised by the results....there were small noticeable changes, ie could lie down on my b...
- Sun Jun 13, 2010 8:41 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: mtf goes to Poland
- Replies: 12
- Views: 3327
Congratulations mtf on your trip, and I wish you the best possible outcome.. I just had the passing thought of how similar the individual stories of our trips from all parts of the world to Poland resembles Chaucer's Canterbury Tales... we each have our own unique tale to tell in our pilgrim's trip ...
- Sun Jun 13, 2010 8:02 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Liberals successful in bringing MS debate into House of Comm
- Replies: 17
- Views: 5660
- Sun Jun 13, 2010 4:39 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Liberals successful in bringing MS debate into House of Comm
- Replies: 17
- Views: 5660
- Fri Jun 04, 2010 9:09 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Plodding to Poland with Johnson...
- Replies: 92
- Views: 19883
- Fri Jun 04, 2010 8:05 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: back to Poland because of restenosis...
- Replies: 8
- Views: 2835
Hi Alby Your question is on my mind as well....while my improvements were minimal at best, its hard to tell if there has been restenosis, and I am debating returning to Poland after 6 months for a followup...there is discussion of the issue in Parliamentary committee here, and it may be better to st...
- Fri Jun 04, 2010 4:34 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: article "MS drug trial a fiasco"
- Replies: 140
- Views: 30303
I have forwarded the link from the BMJ to the MS Society of Canada asking for their response to this news, and commenting that it would be beyond ironic that neurologists are cautioning against moving too quickly on CCSVI while simultaneously prescribing drugs that may be worsening the progression o...
- Thu May 13, 2010 2:30 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CEO of the MS Society of Canada testifies re CCSVI
- Replies: 18
- Views: 6755
Re: .
That's funny, I found all these discussions positive. I might got them all wrong... should read the french version :wink: I agree with you Belou...I thought the transcripts, both English and French, gave an accurate picture of where we are today, and where we want to go wrt CCSVI...I found it amazi...
- Wed Apr 14, 2010 1:15 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Marek keeps us all smiling !
- Replies: 12
- Views: 3458
Hey!! somebody is writing here about me?? :)))) Thx to lelo i found it:))) MUCHAS GRACIAS!!!!!! but we all are making this atmosphere :))))))) i will tell u that it took me 20 min sitting here and reading without any idea what to write so.... sorry for such a deep message :)))))) uhh I hope that ma...
- Mon Mar 29, 2010 2:24 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Alby in Poland 'liberation'
- Replies: 14
- Views: 5257
Re: UPDATE
(update March 2, 2010) Since yesterday, I can stand for 30 seconds, being able to look around and move my arms around, without losing my balance. I only tried 30 seconds, I might be able to stand more. (update March 22, 2010) I now can stand without support for one to two minutes depending on the d...
- Thu Mar 25, 2010 4:16 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Richard in Poland
- Replies: 8
- Views: 3107
- Thu Mar 25, 2010 3:48 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Richard in Poland
- Replies: 8
- Views: 3107
Re: Richard was in Poland!
So good to read your blog and thank you for sharing it with us all. "May the force be with you" Thanks for your encouragement.....As I attempt to follow Terry Wahl's diet to allow for faster blood flow, http://terrywahls.com/index.php?page_id=281# , by eating lots of vegetables, including...
- Wed Mar 24, 2010 1:24 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Richard in Poland
- Replies: 8
- Views: 3107
Richard in Poland
I have been slow in posting the details of my trip to Katowice, partly to get a better assessment of where I stand (lol), and partly out of sheer inertia, but here goes. Left mild Vancouver on February 7, and arrived in blustery, cold, and snowy Krakow the next day, travelled via Lufthansa and LOT P...
- Thu Mar 18, 2010 2:27 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Dr. Zamboni words of caution on stents.
- Replies: 31
- Views: 15287
Re: Follow-Up Question
Not sure I'm posting on the right thread, but I was wondering - if you go to Poland for the treatment, are you supposed to go back for a check-up to make sure things haven't closed up again? If so, what is tge time lapse - ie. one month later? I had angio on azygous and RJug veins in Feb with Dr Si...
- Thu Mar 18, 2010 1:22 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CBC national tonight
- Replies: 18
- Views: 5627
Re: CBC national tonight
Story about me and my brother going to Poland on CBC national tonight. (Also covered in today's Globe and Mail) We're trying to bang the drum! ...Might be the only wake to wake up local IRs, etc. -d The attached 2 CBC reports seem to cover your story...interesting that CBC will accompany you to Pol...