Search found 73 matches

by broomdancer
Tue Dec 11, 2012 11:00 am
Forum: General Discussion
Topic: MS'ers who have had hip replacement surgery?
Replies: 13
Views: 5855

Re: MS'ers who have had hip replacement surgery?

Dear Dr Sclafani: My husband's first serious MS flare up occured in 2003. He started falling down at work, I took him to the Emergerency room where our GP happened to be on call. Our Dr first thought that might be Cancer in the spine. Immediately he was given an MRI where MS was discovered. He was p...
by broomdancer
Mon Sep 10, 2012 9:35 am
Forum: General Discussion
Topic: Problems Healing Scars, Surgeries, etc. With MS?
Replies: 4
Views: 1906

Re: Problems Healing Scars, Surgeries, etc. With MS?

My husband needs 2 hip replacements (one much worse than the other) and his interview with the surgeon went like this...What is your pain level and can you tolerate it? Since he is on 2 Alieve's daily & no DMDs, the Dr wants him to delay his surgury for as long as he can stand the pain. He says it c...
by broomdancer
Wed May 02, 2012 3:50 am
Forum: General Discussion
Topic: Quick question about Canadian doctors...
Replies: 4
Views: 979

Re: Quick question about Canadian doctors...

My husband's MRI was done in a hurry also..our GP seen him in Emerge on a Fri than he we went immediately to another hospital where there was an opening for the machine. The Mon morning he was at our GP's office where the dx was MS. It was about 3 weeks later that he first visited a Neuro. We didn't...
by broomdancer
Tue Jan 10, 2012 12:50 pm
Forum: General Discussion
Topic: Hot Hands and Feet
Replies: 9
Views: 3632

Re: Hot Hands and Feet

My husband always complained of burning hot feet, (very dry & cracked also) especially his left foot. Always thought it strange when many mser's speak of cold hands & feet. After his CCSVI June 2010 treatment he hasn't mentioned his feet being hot although still rough & scaley but not nearly as red...
by broomdancer
Tue Jan 03, 2012 2:33 pm
Forum: General Discussion
Topic: Leg ms, brainstem ms, cognitive ms, what type is yours?
Replies: 8
Views: 2108

Re: Leg ms, brainstem ms, cognitive ms, what type is yours?

Athina: Thank you for replying to me. No results from his MRI yet, but just getting over the holidays may be a factor...again, I appreciate your advice as I am not sure if I understand his earlier MRI results as to what they mean...His MS Dr said that there was a new drug under approval that will be...
by broomdancer
Mon Jan 02, 2012 5:07 am
Forum: General Discussion
Topic: Leg ms, brainstem ms, cognitive ms, what type is yours?
Replies: 8
Views: 2108

Re: What kind of ms do you have

My husband was dx'ed with ppms in 04. Walking deficulties, heat sensitivtiy, fatique, tiredness, spastic left leg, tingleling left side hand and arm, burning feet were his issues. June 2010 had the ccsvi treatment and he had wonderous improvement for about 6 weeks. Most of the improvements have rema...
by broomdancer
Sat Nov 05, 2011 6:24 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: SPASM AND STIFFNESS AS SPASTICITY
Replies: 76
Views: 8186

Re: SPASM AND STIFFNESS AS SPASTICITY

Jimmylegs, upon reading your info on mag I added it to our vit regiment. My husband has MS and luckily I don't. A couple of amazing things happened that I would like to report. Firstly my husband had foot and ankle spasticty that I noticed happened constantly every night while he slept. This has dis...
by broomdancer
Thu Nov 03, 2011 6:55 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: St. Michael's in Toronto
Replies: 8
Views: 1923

Re: St. Michael's in Toronto

The Dr reported that 40 of her patients have had the treatment and most have reported improvements. She is well aware of the procedure and asked my husband if he has had follow up scans (next week in Barrie) and glad that he didnot have stents.. While she sees the need to wait until it's approved an...
by broomdancer
Fri Oct 28, 2011 4:06 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: St. Michael's in Toronto
Replies: 8
Views: 1923

Re: St. Michael's in Toronto

My husband will be seeing Dr Hoho at St Mike's next Wed. Will report on the Dr's opinions...
by broomdancer
Fri Feb 11, 2011 5:05 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Drinking alcohol?
Replies: 13
Views: 2515

Professor Simka of Euromedic told my husband and the others who were being treated at the same time (June 15th) NO Alcohol for 30 days following the procedure. We were surprised as we were unaware of anyone else reporting this. My husband complied for 31 days. 6 weeks following the treatment he bega...
by broomdancer
Wed Feb 02, 2011 4:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Therapy offers hope to MS sufferer
Replies: 3
Views: 1874

We have to pay for the Dopplers now, so it makes sence that we should beable to pay for the treatment also. There are specialists who I am sure are capable and willing to perform this treatment and the info can be gathered and entered into a study. Furthermore, the money can remain local and be used...
by broomdancer
Fri Jan 14, 2011 6:46 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Canadian persons with MS and membership to MS Society
Replies: 9
Views: 2598

Unfortunately the Canadian MSS has not done anything for my husband & I, except to ask us for money monthly, send us enough address labels to last us six lifetimes and nickles that I walked for in the past yrs. I am sure there are people at the local level who are compassionate and understand the ne...
by broomdancer
Mon Jan 10, 2011 3:00 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Liberated Then Go Backwards then Improve
Replies: 2
Views: 1748

This would interest me also. My husband isnot worse than pre-treatment but he has lost some of his gains. A Doppler tech told us that Dr Zamboni told her that it could take 6-18 months to see the full impact of the treatment. Although I have yet to learn of anyone this has happened too but we are st...
by broomdancer
Wed Dec 08, 2010 6:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI scan in Toronto
Replies: 4
Views: 1984

Hi: My husband was scanned in Port Perry last Jan 25th but they had little experience. No more than 3 had been performed at the time and they found no reflux other than possiblely a problem within the transcranial that they didnot have the equipment to scan for. May 7th had another scan at Barrie im...
by broomdancer
Wed Nov 24, 2010 6:50 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Gains, losses and Gains???
Replies: 1
Views: 1068

Gains, losses and Gains???

My husband received his treatment at Euromedic in Poland June 15th. His symptoms began to improve within 24hrs. 6 weeks later they began to recede and now are just about the same for the most part, except he can still rotate his neck 180 degrees, less fatique and his energy is still good. I contacte...

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