Search found 36 matches

by LSITC
Tue Sep 09, 2014 5:50 am
Forum: Drug Pipeline
Topic: Tecfidera
Replies: 46
Views: 13402

Re: Tecfidera

For anyone starting tecfidera please take my advice:
something like omeprazole really helps with GI problems and a 75mg aspirin with each 240mg dose of tecfid takes away all the flushing. good luck - its not an easy drug but i am beginning to feel after 4 months it could be worth it.
by LSITC
Wed Aug 06, 2014 7:01 am
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Tecfidera side effects
Replies: 4
Views: 3128

Re: Tecfidera side effects

My neuro is adamant that I should try to get upto full dose ie 2 x 240mg daily and also told me to take 75mg aspirin with each dose to mitigate side effects. Fingers crossed !
by LSITC
Mon Jun 16, 2014 7:04 am
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Tecfidera side effects
Replies: 4
Views: 3128

Tecfidera side effects

I have been taking Tecfidera for three months. From the start I have had severe flushing, GI discomfort (taking 40mg omeprazole daily) loss of appetite and gradual onset of depression and general mental fogginess. The side effects got so bad that my neuro told me to cut back down to 240mg once daily...
by LSITC
Wed Mar 26, 2014 7:48 am
Forum: General Discussion
Topic: New rules for private prescriptions
Replies: 7
Views: 1897

Re: New rules for private prescriptions

Not sure about the rule changes but I had the same situation. I had to see my neuro privately to get a private script for fampyra. It is not cheap but it is worth it. The reason it is not available on NHS is because the idiots at NICE decided it was too expensive and not sufficiently proven to be of...
by LSITC
Mon Jul 08, 2013 6:33 am
Forum: General Medications
Topic: Azathioprin : imuran
Replies: 2
Views: 3744

Azathioprin : imuran

Hi to all out there in interweb land I have just been diagnosed with autoimmune hepatitis (in addition to relapsing remitting ms) and my liver specialist has advised me that he will soon want to start me on Azathioprin for hepatitis. I understand this is also used as an ms treatment so the question ...
by LSITC
Thu Mar 28, 2013 1:53 am
Forum: Ampyra
Topic: Would like to hear from people using Ampyra
Replies: 22
Views: 23831

Re: Would like to hear from people using Ampyra

In London Uk. Using fampyra for 15 months. Legs feel stronger and def more energy. Have been getting it free but trials now stopped here so am waiting to find out cost :(((( But was diagnosed with Crohn's four months ago and am worried this is a side effect of fampyra. It does say it can cause upset...
by LSITC
Sat Jan 28, 2012 3:57 am
Forum: Ampyra
Topic: Fampyra launched in the UK to aid MS walking
Replies: 3
Views: 7223

Re: Fampyra launched in the UK to aid MS walking

Hi TwiNTwin. Good to hear from you. FYI all side effects have now disappeared thank goodness. I am now taking 2 x 10mg daily as I could not tolerate full dose initially but have done it progressively over a few months. I am sorry you are having blood pressure problems. Because my neuro enrolled me o...
by LSITC
Sat Nov 19, 2011 10:01 am
Forum: Ampyra
Topic: Fampyra launched in the UK to aid MS walking
Replies: 3
Views: 7223

Re: Fampyra launched in the UK to aid MS walking

I am trialling ampyra and wonder if anyone else is so we can compare benefits and side effects. I am finding it is helping me combat fatigue, in fact my energy levels are better with amprya than with modafinil. Also legs feel stronger. However I have dizziness, heartburn and constipation! You cannot...
by LSITC
Thu May 20, 2010 7:05 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cervical Reason for CCSVI
Replies: 26
Views: 5929

Vertigo

Hi LR

Sorry you have vertigo but I have always found that the best medication to get rid of it is Serc. If you can get a script for Serc 16, take 2 and go to bed as they will make you sleepy. When you wake up you will feel 100% better. Hope this helps.
by LSITC
Thu May 13, 2010 7:37 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Essential Health Clinic now offering treatment packages!!!
Replies: 31
Views: 6341

EHC CCSVI Packages

Hi all I expressed my concerns about EHC a while back. They are headed by a doctor who, in my opinion, seems to have had a lot of fingers in an awful lot of pies over the years - the only apparent common theme being how much money each pie could earn him. I do not want to sound negative - I would li...
by LSITC
Fri Apr 23, 2010 6:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Gibbledygook's Stents
Replies: 227
Views: 34631

Pregnancy / CCSVI

Hi Gibbledy So sorry to hear your news about the kink. Hopefully Dr Dake will be able to point you in the direction you should go. Is Dr Simka ok about seeing you as you were under Dr Dake previously? You and a lot of other people on this site have an incredibly vast knowledge and understanding of C...
by LSITC
Wed Apr 21, 2010 7:35 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Gibbledygook's Stents
Replies: 227
Views: 34631

Pregnancy / CCSVI

GG

So sorry to hear about the kinks. Are you sure that wherever you had this done they are totally in the know about what to look for? HAve you spoken to Stanford and asked for their opinion?

Regards
by LSITC
Wed Apr 14, 2010 9:57 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Live Zamboni / Zivadinov CCSVI web forum - April 14th 2010
Replies: 39
Views: 8954

Blog

Cheer - thank you so much for this. I only found out about this about 10 minutes into the webcast and will catch up on it later on the NMSS site.
How do you lot find out about these things - I never seem to know what is going on. Aaaarghhhhh!!!!! 8)
by LSITC
Wed Apr 14, 2010 9:51 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Gibbledygook's Stents
Replies: 227
Views: 34631

Pregnancy / CCSVI

Hi GG You are so not at the last chance saloon of pregnancy. A friend of mine is at least 3 years older than you and just produced twins at her first effort. OK she does not have MS but as a healthy person she had a tough pregnancy. Pregnancy is hard - I had two really poor pregnancies - but try and...
by LSITC
Mon Apr 12, 2010 8:41 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in Israel
Replies: 47
Views: 12528

CCSVI

Hi Shoshana

I read your posting with great interest but can you please explain something - are you saying that treatment is now available in Israel?

I would be very interested if it is.

Many thanks

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