Search found 25 matches

by BamBAM
Mon Sep 13, 2010 4:09 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cost of Liberation procedure
Replies: 30
Views: 12370

I had the liberation procedure 5 day's ago.

Scanning in San Diego, CA $2500,00

Treatment in Del Mar, CA $7500,00

Cost out of pocket. $10,000

Free MRI Followup day after procedure, San Diego, CA

Cost of feeling better= PRICELESS!!!
by BamBAM
Fri Sep 10, 2010 11:21 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI tracking project-POST PER P.1 FORMAT ONLY
Replies: 163
Views: 284424

CCSVI TRACKING 09/08/2010 MS HISTORY Name ( BamBam) Male/Female: Male Age: 44 RRMS, Diagnosed, Oct 2009 Lesion locations: 3 white matter lesion's, Rightside of Brain, Cervical spinal lesion's MS treatments: Copaxone, Nuvigil, Cymbalta MS symptoms before stenosis intervention: Dizzyness. Fatigue. Bra...
by BamBAM
Thu Aug 19, 2010 9:07 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Sept 8th, Liberation
Replies: 6
Views: 2251

Thanks Everyone, I will update after the procedure,Good or bad
by BamBAM
Wed Aug 18, 2010 10:18 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Sept 8th, Liberation
Replies: 6
Views: 2251

Sept 8th, Liberation

Hi All

I am Scheduled for Placebo Treatment!!, OOOPPS, I meant Liberation Treatment on Sept 8th, Thanks to the Hubbards
by BamBAM
Sat Jul 24, 2010 2:58 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Hubbard Foundation, July 29th, Anybody else?
Replies: 6
Views: 2665

Hubbard Foundation, July 29th, Anybody else?

Hi all

I am going to be scanned at the Hubbard Foundation, Thursday July 29th, Was just wondering if anybody else will be there that day.
by BamBAM
Wed Jun 23, 2010 9:46 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CONFUSED....FRUSTRATED...NEED SOME ADVISE...PLEASE!!!
Replies: 16
Views: 2991

Hi Twin Cheerleader posts on this site and also on Facebook ( CCSVI in Multiple schlerosis ),look it up if you have facebook. Did the Doctors give you a diagnoses of MS or are they still calling it TM?, I ask because there is another great forum for people with TM. myelitis.org Check it out, Post yo...
by BamBAM
Fri Jun 11, 2010 11:35 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My E-Mail from USC
Replies: 2
Views: 1511

Yeah I am a patient there, Was really hoping they would get a grant,
by BamBAM
Fri Jun 11, 2010 6:11 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My E-Mail from USC
Replies: 2
Views: 1511

My E-Mail from USC

Hi Brian, I wanted to let you know that we were not awarded a grant. For your information the following institutions were awarded the grants: • Dr. Brenda Banwell, The Hospital for Sick Children, Toronto, Ontario: studying vein abnormalities in children and teenagers who have MS, and healthy control...
by BamBAM
Thu Jun 10, 2010 1:34 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Chest veins?
Replies: 7
Views: 5990

Nope no blood pressure problems in fact my GP has made several comments that my blood pressure is always normal or a little low, He even took my pressure during a relapse and thought it should be much higher if only for the stress I was under at the time, Another thing is when my Neuro did a spinal ...
by BamBAM
Thu Jun 10, 2010 12:58 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Chest veins?
Replies: 7
Views: 5990

My veins only bulge out from the upper middle of my left chest to my left shoulder and it bulges all the time, All the other veins I can see just below the skin, I have a constant ringing in my right ear that at certain times of the day or night sounds like its in the entire right side of my skull, ...
by BamBAM
Thu Jun 10, 2010 8:42 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Chest veins?
Replies: 7
Views: 5990

Chest veins?

Hi All I was wondering if any of you have had a similar problem, Since I can remember I have had veins visible just above the left side of my chest leading into my shoulder like a veracose vein, I just figured it was from working out when I was younger, Over the past year I have noticed that more ve...
by BamBAM
Wed Jun 02, 2010 8:55 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Question for those with CCSVI: Did you have TM before MS?
Replies: 10
Views: 1960

Hi TmRox This is AMAZING!!! I have read your posts on the TM board and you have replied to some of my posts ( bchambers ) , I just had my 1 year anniversary of my TM attack, I was told by my Neoro that I was CIS and had an 80% chance of having another attack and it turning into MS, I have been readi...
by BamBAM
Thu May 20, 2010 9:16 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: That's what I'm talking about- CALL THEM OUT!!! WTG!!!
Replies: 17
Views: 3475

I was recently Kicked off Health Boards MS forum for trying to spread the word about CCSVI, I posted some info and links to CCSVI papers and websites, I had 2 repies by fellow MSers who hadnt heard of Zamboni or his work, After the 2 replies i had one from a Moderator who basically told the people i...
by BamBAM
Sun Apr 04, 2010 10:41 pm
Forum: Copaxone
Topic: It's not so bad!
Replies: 6
Views: 2091

Hi All I have been on copaxone now for a little over 2 months, I was scared to start my injections and actually wasted 6 months time, I read all the bad stories on here and else where about the lumps & bumps and the stinging, I finally recieved my Copax and the Shared Solutions nurse came to my home...
by BamBAM
Tue Mar 16, 2010 9:16 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Spinal tap
Replies: 2
Views: 1528

No, Unfortunately I was in the hospital slowly losing feeling from the chest down, Everything was a bit chaotic for me and this was way before CCSVI broke