This Is MS Multiple Sclerosis Knowledge & Support Community

Sorry for the delay... Is your son still taking the Avonex? A friend of mine who has been on Avonex for years started LDN 4 days ago and is feeling somewhat worse but we have had a very hot, humid spell so that could be the reason, too. I was Dxed w MS in '85 and have enjoyed 66 years of life. So fa...

Let us know how your son does on 4.5mg. When I get my next Rx I'm going to ask for 4.5mg as well. Has he had any MRI's done since starting the LDN that may show a slowing of progression?

Nan

Sorry, I forgot to enter my name in my last post.

This is my fourth week on LDN. At first I could not sleep but solved that by cutting the dose to 1.5mg for a week. I've since been on 3mg. So far I have noted more energy and much, much less cramping in my legs, feet and hands. Prior to me, my neuro had one patient taking LDN and, since he wrote the...

Michelle, I have been getting Medrol 1 GM IV for the last 5 months. This month my neuro gave me a prescription to buy the Medrol at a pharmacy. I was told to mix the powder (that is normally used IV) with a very sweet juice (such as apricot) as it is extremely bitter. He said the patients he has giv...

I have SPMS. My neuro has given me a prescription for LDN and I've located a compounding pharmacy. In my research on the web I've found one mention (Dr M R Lawrence) of LDN not to be taken with steroids. I've been on Solumdrol 1 GM IV/mo for six months. What does Dr. Bihari have to say about this?