Search found 7 matches

by scraps
Fri Mar 05, 2010 11:25 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How to contact Dr. Simka?
Replies: 6
Views: 3662

How to contact Dr. Simka?

I did a search, but got no info regarding how to contact Dr. Simka. Does anyone out there have this information?

I found a website that had an e-mail address, but it kept bouncing back to me.

Any help would be appreciated
by scraps
Fri Jan 01, 2010 9:43 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Loss of a chance of a cure
Replies: 44
Views: 11264

Hi Ana, thanks for your comments and welcome! My insurance paid for this procedure, so no class action for me, but it sounds like a good idea if for nothing else, to wake em up that we refuse to hear anything but progress in this area. Not sure if I would sue any particular doctor per se. Last thin...
by scraps
Mon Dec 28, 2009 6:57 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Going to Poland!!!!
Replies: 145
Views: 38565

zap wrote:Same day as me @ Stanford! Good luck!
Are you scheduled to have the whole procedure? If so, how did you get scheduled? What did you do to get in touch with Stanford?

Looking forward to your reply.
by scraps
Sun Dec 27, 2009 9:04 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI screening in NY-7 Tesla MRI machine/NYU research
Replies: 49
Views: 14306

To All of You:

Thx for the support and the info. I am seeing my gp on Wed. Will see if I can get a scrip then. Again Thx.
by scraps
Sun Dec 27, 2009 1:51 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI screening in NY-7 Tesla MRI machine/NYU research
Replies: 49
Views: 14306

Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09

Cheerleader:

Where and who treated your husband? How did you go about the process of obtaining the procedure?
by scraps
Sun Dec 27, 2009 1:31 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI screening in NY-7 Tesla MRI machine/NYU research
Replies: 49
Views: 14306

[quote="jenf"]Hi Michelle, Dr Herbert was the 3rd Neuro I went to after my introduction to this wonderful disease this past spring. I used the word "was" because I went to him once for a consult, asked him about LDN, and he chuckled and advised me with that gentle "pat on th...
by scraps
Sun Dec 27, 2009 10:36 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI screening in NY-7 Tesla MRI machine/NYU research
Replies: 49
Views: 14306

I just emailed Dr. Grossman at NYU to see what they are doing about screening for CCSVI as they have a tesla 7 machine and I found out while doing research on the NYU site that he collaborated with Dr. Haacke on his research so he should be very familiar with it. As soon as I hear back I will post....

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