Search found 482 matches

by Bethr
Thu Mar 29, 2018 2:31 pm
Forum: General Discussion
Topic: Melatonin improves primary progressive MS - Case Study
Replies: 22
Views: 4003

Re: Melatonin improves primary progressive MS - Case Study

Just one more thing to ponder in this melatonin-MS discussion: The influence of vitamin D supplementation on melatonin status in patients with multiple sclerosis. http://www.ncbi.nlm.nih.gov/pubmed/23665342 Abstract BACKGROUND: Multiple sclerosis (MS) incidence is higher in geographic regions with ...
by Bethr
Mon Nov 09, 2015 11:53 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: A Single Drop of Blood creates MS
Replies: 25
Views: 4368

Re: A Single Drop of Blood creates MS

You need to fix your neck and fluid(s) flow. or You will have a neurological condition. That sums up what I've been through in many respects. I had a golf ball sized cyst removed from my neck in 2012 and I've been pretty damn good since then. It did take a while to slowly heal though, more than 2 y...
by Bethr
Thu Sep 10, 2015 1:45 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Phlebotomy anyone?
Replies: 1161
Views: 177384

Re: Phlebotomy anyone?

I wonder if that study progressed to the next stage? I'm doing really well, and have had no need to get more blood taken off. My iron/trans sat. stays in the normal range. My ferritin is up quite a bit, but I get tested every three months and it's not over recommended levels yet. I would prefer to k...
by Bethr
Tue Jun 23, 2015 6:12 pm
Forum: MS Etiology and Pathogenesis
Topic: CNS lymph vessels found. Brain is not immune-privileged
Replies: 59
Views: 9915

Re: CNS lymph vessels found. Brain is not immune-privileged

Thanks Cheer, I know a bit about the lymphatic system as I have a piece missing, my spleen. Movement is apparently good for your lymphatic system to keep fluid moving. I get quite dirty blood with lots of microparticles and old cells in it and also I have high platelets, so the rest of my lymphatic ...
by Bethr
Tue Jun 23, 2015 3:12 pm
Forum: MS Etiology and Pathogenesis
Topic: CNS lymph vessels found. Brain is not immune-privileged
Replies: 59
Views: 9915

Re: CNS lymph vessels found. Brain is not immune-privileged

how is it that we have oligoclonal bands that are unique to csf? Wouldn't some of the same immune cells drain into the bloodstream and show up on blood tests I thought OB's could show up in serum? Anyway, I'm following all this quite closely. It must be going to affect a lot of other theories and t...
by Bethr
Wed Nov 05, 2014 3:31 pm
Forum: General Discussion
Topic: MS AFTER SPLENECTOMY.
Replies: 3
Views: 1835

Re: MS AFTER SPLENECTOMY.

Hi, yes I had a splenectomy for trauma 40 years ago. I've never noticed much difference, although I do get a bit breathless when doing hard exercise until my second wind seems to come into play. Spleens can inject oxygen quickly into the blood stream. Seals and other diving mammals have huge spleens...
by Bethr
Sun Jan 19, 2014 1:33 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: hypoxia-related neurological deficits in sleep apnea
Replies: 21
Views: 8439

Re: hypoxia-related neurological deficits in sleep apnea

Throwing this to the top! Very interesting thread. I reckon sleep apnea was one of my major contributors to the brain lesion I developed and the awful fatigue, and lack of healing in general, and my misdiagnosis of MS. Lack of oxygen can cause the body the make more haemoglobin, absorb more iron for...
by Bethr
Mon Jan 06, 2014 11:05 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: relieving hypoxia in EAE rats leads to fast improvement
Replies: 21
Views: 3192

Re: relieving hypoxia in EAE rats leads to fast improvement

I liked the quote too :smile: In chronic sleep apnea, where people get hypoxia whilst sleeping. phlebotomy can be used to make the patient feel better, providing they can tolerate it, ie: have enough body iron. That's kind of weird, but it apparently it works. I think it has something to do with gas...
by Bethr
Sat Oct 26, 2013 11:55 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Phlebotomy anyone?
Replies: 1161
Views: 177384

Re: Phlebotomy anyone?

Absolutely Katie45, I thought I would never give it up, as I loved to smoke and I smoked a lot! Any time I tried to give up over the 35 years I'd be like a bear with a sore head and would have another smoke just to stop everyone else suffering my bad moods :lol: . In the end I just put on the nicoti...
by Bethr
Mon Oct 07, 2013 12:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: relieving hypoxia in EAE rats leads to fast improvement
Replies: 21
Views: 3192

Re: relieving hypoxia in EAE rats leads to fast improvement

Maybe there is just an existing susceptibility/inflammation in the brain already. I think I'm similar to Cheer's, Jeff. Because my lack of oxygen was physical, a throat cyst growing over an 18 year period from pea size in 1994 to golf ball size in 2012. My sister has been diagnosed with MS, so a fam...
by Bethr
Sun Oct 06, 2013 11:40 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Phlebotomy anyone?
Replies: 1161
Views: 177384

Re: Phlebotomy anyone?

Sorry to hear you've been unwell. I think the iron and porph are closely related, one sets off the other and they are often genetically linked especially PCT. My sister is pretty well lately, definitely northing getting worse for a while now. She broke her wrist earlier this year, fell over, as you ...
by Bethr
Tue Oct 01, 2013 10:09 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Phlebotomy anyone?
Replies: 1161
Views: 177384

Re: Phlebotomy anyone?

Katie45, so sorry for my late reply, I haven't visited for a while. I really don't know the answer to that. We are all such individuals, and I'm sure our balances are all different and unique (like our genes and the innumerable combinations of same). In some ways I feel my high iron protected me, an...
by Bethr
Sat Sep 07, 2013 1:51 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Phlebotomy anyone?
Replies: 1161
Views: 177384

Re: Phlebotomy anyone?

On the long road of research on blood-letting I've come to realise that there definitely is something to it, in that I've read so many accounts of people feeling less symptoms by drawing blood. Also people with hepatitis C respond better to anti-viral drugs like interferon when they first have their...
by Bethr
Fri Aug 30, 2013 11:32 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Phlebotomy anyone?
Replies: 1161
Views: 177384

Re: Phlebotomy anyone?

Hey Katie45, hows it going? Wow, that's weird about your mum and siblings having the HH genes and not you ?? What's that about? I'm pretty good now, after finding out why my body was saturated with iron because of a secondary cause. The hemochromatosis genes certainly influence things. My iron is av...

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