This Is MS Multiple Sclerosis Knowledge & Support Community

thanks 1eye. much appreciation. with little trust in any big pharma, i have a hard time trusting anything they say at this point... 4 years on ty and nothing but bad things about getting off of it doesnt look inviting.

thank you for the reply. helpful and insightful. it is appreciated..

anyone spoken with their neuros about a wash out period before switching to another drug? im at 48-50 infusions and lookin to switch with biogens new info released about pml for those of us further than 48 infusions... im lookin for an alternate route to the 30 days of solumedrol my neuro is talking...

anyone?

has anyones neuro spoke to them about the wash out stage and what they are planning to do in the switch from ty (or anything else) to bg12? i have horrible side effects to solumedrol and dont want to do the 4 week solumedrol wash my neuro is asking. my neuro also has the worst record ive seen on yel...

cece, thanks, i am going with him on the 17th. ponec wont do stents unless there is 0 blood flow. this is my second go around withh ccsvi with the first being in arizona at the az heart institute. where i had a bit of a nightmare go down. long story, if youre interested let me know. i was referred t...

anyone? no one?

anyone gone thru him for the procedure? your thoughts, advice, etc are more than welcome.. thanks.

malden, on numerous occasions, ive had the contrast injected during imaging.. this feeling was after they pulled the wire out of my vein and no imaging was done anytime after the procedure. also, i know that everytime ive been given the contrast, i can taste it... and this time i couldnt. thirdly, i...

at the risk of sounding completely ridiculous, has anyone on here ever jumped in a hyperbaric chamber? or even a bit further...noticed any differences while being indoors somewhere where the oxygen is a bit more pure. ie vegas hotels/casinos? oxygen bars? i know its a stretch, but... you never know,...

loobie, never got the pm. i checked earlier today and decided to wait til i got home from work to check again and nothin!

thanks everyone ccsvihusband, pm sent... nhe, ill look into the k2/menaquinone today for sure! burg, i was also on several different meds for the first year, none worked. then and currently, im on tysabri, which i feel has been the leading role in me not having any relapses for over two years. prior...

its been a tough one to swallow with being on the table twice for the procedure as im sure it is for burg as well. sorry, i dont mean to highjack the thread, i just need advice. not found, so did you get the procedure done now that they did find the pinched azygous? what have been your results if so...

i too have a similar story and am finally getting back into the thought process of thinking about ccsvi again. i was treated in phoenix arizona at the heart institute in a round about way, twice. im only posting this here for two reasons. one, to get it off of my chest and two, to see what others mi...

just got off the operating room table. went in for the liberation procedure here in arizona. on the table and all set to go, the team of doctors doing the work decided that thru the imaging of the angiogram that i didnt have any blood restriction in my jugulars or azygos even thought they saw calciu...