Search found 278 matches

by mangio
Mon Jul 19, 2010 3:29 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: in today's Edmonton Journal
Replies: 6
Views: 2244

PCakes did you hear? - breaking news on f.b. - we are all meeting 11 August, unbelievable!!!! Thanks to all the folks that have worked so hard on this and for so long and especially the media that have just been such a hugh part of the campaign. Special thanks to Brightspot, Johnson (not really) and...
by mangio
Fri Jul 16, 2010 2:17 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: a modest proposal
Replies: 16
Views: 3734

one more
by mangio
Wed Jul 14, 2010 10:49 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Making a list trial applicants
Replies: 0
Views: 1522

Making a list trial applicants

Tomorrow we are meeting to finalize plans for a potential small pilot trial. It's a iron-chelator drug that shows promise and has approval in a few countries. The approach was recommended in lieu of angioplasty. And based on the feedback of some of the patients post-lib I think it is wise. Haveing a...
by mangio
Wed Jul 14, 2010 12:41 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Barb Farrell update
Replies: 110
Views: 30641

Cece,
Patrick has a new update on Barb's condition.
by mangio
Wed Jul 14, 2010 12:30 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Nancy needs our help! Media links added..
Replies: 14
Views: 2800

Jean is the intake nurse in the states, 1-866-999-3848 x720 she handled all the arrangements for a family to fly their mother 9.5 on EDSS, to a hospital near Cancun. Some tiny improvements, including being able to shallow much better. She was on a feeding tube. One of the hospitals she books for has...
by mangio
Wed Jul 14, 2010 11:51 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Testing
Replies: 5
Views: 1657

Patent of Foramen Ovale, PFO, can be looked at now with Transcranial doppler, it's being researched actively for migraine syndromes but
it is only theorized research at this time
by mangio
Mon Jul 12, 2010 4:03 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Geographic MS populations and CCSVI?
Replies: 11
Views: 2161

I know this is alot more extreme but a lecture I went to by a former
astronaut - now alzheimers neuroscientist - admitted to the audience
that she herself is as many of her fellow astronauts, quite
concerned about brain injury and the longterm risk of developing dementia diseases from space missions.
by mangio
Mon Jul 12, 2010 10:06 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Thyroid cysts...
Replies: 24
Views: 5171

Dr W.G. touched on this subject briefly in Calgary in her presentation. She said many mser's have t. problems. One member of CCSVI Manitoba had her thyroid checked recently and a very large mass was discovered. I don't know if it was found to be malignant, haven't been following her blog lately. She...
by mangio
Sun Jul 11, 2010 11:23 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: UK Turf War on CCSVI - Daily Telegraph 12 Jul p23
Replies: 33
Views: 6503

Great article. Loved the words caught in the crossfire.
by mangio
Sun Jul 11, 2010 10:24 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MS Ontario Writes to Ontario MPPs--To NOT Fund CCSVI!
Replies: 15
Views: 3920

It's a very good question. Without Dr Zamboni's groundbreaking research and academic research centre, Dr Simka, Dr Haacke, Buffalo, Direct-MS, the Hubbard Foundation, CCSVI Alliance, the surgeons/physicians, imageing experts/centres, Italian and American patient pioneers, advocates, media and blogge...
by mangio
Sun Jul 11, 2010 11:40 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MS Ontario Writes to Ontario MPPs--To NOT Fund CCSVI!
Replies: 15
Views: 3920

The Pan-Vascular group will go along way to helping end this cartel.
Ironic that their stance may turn out to be one of the most defining moments in this quiet but powerful revolt. A new day has dawned.
by mangio
Sun Jul 11, 2010 11:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Effectiveness of MS drugs
Replies: 56
Views: 8692

Why does it have to be one or the other. After meeting with researchers over the last month that are forming the new Pan-Vascular Treatment consortium I can't believe it will ever be a this or that. Neuordegeneration is just too complex a process and will not be solved easily. Let's see where all th...
by mangio
Sat Jul 10, 2010 10:32 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Barb Farrell update
Replies: 110
Views: 30641

1eye,

Someone posted documents on f.b. (ccsvi ms toronto) of correspondence
between various health agencies in Ontario. It's interesting.
by mangio
Thu Jul 08, 2010 6:43 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 171485

Trish, pm!!!!!

Go to advanced search