Search found 164 matches

by JoyIsMyStrength
Sun Jan 02, 2011 1:04 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani ASKS a question
Replies: 109
Views: 21776

Pre-diagnosis x20 years: Dx'd with hypochondria "you're just hyperventilating" -- 2 different docs told me that's why I had numbness and tingling First major relapse, so weak I could not lift a fork, neuro told my husband, "Your wife just needs to get back on her horse." Mother-in-law said she expec...
by JoyIsMyStrength
Sat Dec 11, 2010 11:41 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1763329

Well this oughta start a debate... now what? 1. It appears the vein is not wanting to stay open, too small. 2. Re-opening via balloon only leads to more scarring and worse narrowing. 3. Every time you go back in it's further trauma to veins. 4. I vote covered stent. Yes, it has issues of its own, in...
by JoyIsMyStrength
Wed Sep 01, 2010 11:00 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My wife's turn next week in Poland - am I dreaming or not?
Replies: 73
Views: 14580

Ernst, how wonderful! Congratulations to you both!

Pam
by JoyIsMyStrength
Thu Aug 12, 2010 4:16 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: FlashHack is Liberated
Replies: 161
Views: 30412

Way to go, Flash!
by JoyIsMyStrength
Tue Aug 03, 2010 7:22 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: fiddler finally flying... to Poland
Replies: 118
Views: 20453

Re: Three months plus

fiddler wrote:If I do start sailing in storms, I'll let you know.
...Ted
Oh I'd say you have sailed thru quite a few storms, Ted! 8) Congrats on the good report for your 3-month mark and here's to even smoother sailing in the months ahead!

Pam
by JoyIsMyStrength
Wed Jul 21, 2010 4:52 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Going to Katowice, Poland from June 23-30
Replies: 47
Views: 9415

Trish what a sweet thing to say! Thanks! :) Anyway... it's been almost a month so here's an update. Things have been up and down for me... currently down, but I'm seeing very encouraging changes, sometimes just for a few days, like: - People tell me that my voice is stronger; they're not having to a...
by JoyIsMyStrength
Wed Jul 21, 2010 4:29 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Katowice, Poland: Good, Bad & Ugly
Replies: 27
Views: 5071

Just a quick follow-up to say... oops! My daughter pulled out my MRV results envelope and looked at the print-outs of images with me. She felt something extra in the envelope and I discovered not one but two CD's in the bottom! Duh! I am so sorry I complained about not receiving CD's. My hands are n...
by JoyIsMyStrength
Thu Jul 15, 2010 8:13 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: FlashHack is Liberated
Replies: 161
Views: 30412

Moderators? Please help... so many newbies signing on here just to denigrate FlashHack, so many insults, accusations, etc. FlashHack is respected around here and from everything I've seen, it is against his nature to willfully harm anyone or cause trouble. I doubt he has ruined anything but he's rev...
by JoyIsMyStrength
Thu Jul 15, 2010 7:14 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Going Back to Poland for a check Up.
Replies: 7
Views: 2007

Why don't you just ask them, colmmc? :wink:
by JoyIsMyStrength
Wed Jul 14, 2010 6:31 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: FlashHack is Liberated
Replies: 161
Views: 30412

FlashHack,

That is outstanding and I'm in love with your Sponsor. :-)

Blessings to you and congratulations,
Pam
by JoyIsMyStrength
Mon Jul 12, 2010 7:12 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Spreadsheet for tracking thread
Replies: 15
Views: 3427

Thanks. If anyone has any more thoughts before Murchy gets too far... please speak up. I realize the most disappointing part may be having words like "positive" and "negative" rather than something more substantial but honestly it's very difficult to wade thru the info and make good comparisons -- s...
by JoyIsMyStrength
Mon Jul 12, 2010 5:32 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Spreadsheet for tracking thread
Replies: 15
Views: 3427

Outstanding and unexpected, Murchy! 8)
by JoyIsMyStrength
Sun Jul 11, 2010 12:38 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: The Overlooked Other Aspect of CCSVI Treatment.
Replies: 35
Views: 5715

Re: The Overlooked Other Aspect of CCSVI Treatment.

I then thought about something: Why is it that while I had the identical venous problems 10 years ago, I could more or less walk normally then and I can't now? I had the exact same stenosis in the exact same location. What is different? Donnchadh, out of curiosity, how do you know for sure what you...
by JoyIsMyStrength
Sat Jul 10, 2010 2:31 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Effectiveness of MS drugs
Replies: 56
Views: 8579

Re: MS Drugs and People With MS

I realise that the 'group think' on the chatroom is that all MS drugs are the work of big bad pharma whose only purpose is to make money from poor sick pwMS. Hey Mark, I still think you made some valid points in your overall post (pardon the above quote taken out of context), but one thing that has...

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