Search found 8 matches

by whirlaway
Sun Apr 18, 2010 3:07 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: Experiences with Tysabri
Replies: 66
Views: 109915

I have been on Tysabri since January 2008. I receive a monthly infusion and have not had any relapses of my MS
by whirlaway
Sun Jan 10, 2010 5:21 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: Experiences with Tysabri
Replies: 66
Views: 109915

I just had my 25th infusion of Tysabri. I have no side effects and no MS exacerbations over two years now.
by whirlaway
Thu Jan 07, 2010 5:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - get diagnosed ASAP
Replies: 12
Views: 4644

It was a vascular surgeon who read my MRV and he told me that there was no narrowing in my jugular.
by whirlaway
Wed Jan 06, 2010 4:39 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - get diagnosed ASAP
Replies: 12
Views: 4644

Mr Success,

I had my MRV in Providence RI, if that is what you mean. I was a MRV of the Jugular.
by whirlaway
Tue Jan 05, 2010 5:57 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI- just the facts, ma'am
Replies: 114
Views: 190405

i have had MS for 27 years. I recently had a MRV that showed no narrowing in my viens. I was not happy with my MHV. What to do next?
by whirlaway
Tue Jan 05, 2010 5:29 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dianosed with doppler ultra new jersey looking for surgeon
Replies: 7
Views: 6486

I had a MRV and it showed no narrowing in my viens. Would doppler ultrasound possibly show something different?
by whirlaway
Sun Jan 03, 2010 4:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI Prevalence
Replies: 0
Views: 1978

Hello,

Some web post state, Every MS patient tested so far has it. Over 500 MS patients in Italy have it. I've had Ms since 1982 and two weeks ago I had an MRV and there was no narrowing in my viens. Where do I go from here?
by whirlaway
Sun Jan 03, 2010 4:14 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - get diagnosed ASAP
Replies: 12
Views: 4644

Hello,

Your post states, Every MS patient tested so far has it. Over 500 MS patients in Italy have it. I've had Ms since 1982 and two weeks ago I had an MRV and there was no narrowing in my viens. Where do I go from here?

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