Search found 2509 matches

by HarryZ
Sun Nov 05, 2017 1:22 pm
Forum: Medical Marijuana
Topic: Marijuana compound may stop MS inflammation
Replies: 9
Views: 3074

Re: Marijuana compound may stop MS inflammation

Deadheadgrateful wrote:But not in ND!
MJ is a drug like other drugs. But unfortunately it carries a stigma with it that prevents some from realizing this. Scientific studies have been carried out on MJ for many years and several benefits have been discovered. But like any other drug there have been pros and cons.
by HarryZ
Wed Oct 18, 2017 7:06 am
Forum: Ocrevus (Ocrelizumab)
Topic: Deaths overshadow ocrelizumab trials in MS
Replies: 4
Views: 4044

Re: Deaths overshadow ocrelizumab trials in MS

Not really. There is always a risk/reward assessment in meds. MS patients tend to accept a much higher risk level than some other diseases. Unfortunately they do because to date, there certainly isn't any cure and the current meds are not all that effective. This increases the frustration level of ...
by HarryZ
Sat Aug 12, 2017 8:56 am
Forum: General Discussion
Topic: Scientist Claims She Is On The Verge Of Curing MS
Replies: 11
Views: 1472

Re: Scientist Claims She Is On The Verge Of Curing MS

Not quite the right thread, and I may be behind the curve, but has anyone heard of anything in the pipeline concerning the use of CRISPR technology in the treatment of MS. I've been reading articles and watching videos on the treatment of viral infections with CRISPR, and in one study complete (no ...
by HarryZ
Thu Aug 10, 2017 10:25 am
Forum: General Discussion
Topic: Scientist Claims She Is On The Verge Of Curing MS
Replies: 11
Views: 1472

Re: Scientist Claims She Is On The Verge Of Curing MS

I was diagnosed in 1985 and MS was known as "The Disease who's time had come" with a cure right around the corner...I'm still waiting :roll: I am definitely not holding my breath on this person :twisted: My wife (passed away in 2007 ) was diagnosed in 1971. I can't tell you how many times I was tol...
by HarryZ
Thu Aug 10, 2017 10:18 am
Forum: General Discussion
Topic: Only 21% of people with MS in the UK receive a DMT
Replies: 2
Views: 681

Re: Only 21% of people with MS in the UK receive a DMT

According to a report, funded by Sanofi Genzyme and conducted by Adelphi Research UK, The UK has one of the lowest disease modifying therapy (DMT) treatment rates in Europe (21%), with quarter of UK patients not aware of the DMTs that are available to them...Read more - http://www.ms-uk.org/only-21...
by HarryZ
Sat Jan 07, 2017 7:28 am
Forum: General Discussion
Topic: Feeling Betrayed by the MS Society of Canada
Replies: 5
Views: 1135

Re: Feeling Betrayed by the MS Society of Canada

I am typically not active in forums however in this instance I feel compelled to speak up. I recently learned that the Multiple Sclerosis Society of Canada closing the doors to the MS Centre located in Victoria Canada. The Centre has been open for over 40 years and has become the home to many provi...
by HarryZ
Sat Oct 15, 2016 5:57 am
Forum: General Discussion
Topic: New to MS. Recently started Tecfidera and only got worse..
Replies: 9
Views: 1290

Re: New to MS. Recently started Tecfidera and only got worse

DMDs typically prevent future relapses I believe that the people who make the DMDs state that these drugs reduce the number of relapses by about 30%. So over a 2 year period, if you were to suffer 3 relapses, these would be reduced to 2. With the cost of these drugs along with the side effects, not...
by HarryZ
Wed Oct 05, 2016 6:06 pm
Forum: General Discussion
Topic: Experimental drug shows promise in MS treatment
Replies: 2
Views: 896

Re: Experimental drug shows promise in MS treatment

A new experimental drug has shown promise in treating multiple sclerosis in mice model. Study author Dr. Scott Zamvil said, “This study has given us more insight into how laquinimod works. But because this was an animal study, more research needs to be done before we know if it could have similar r...
by HarryZ
Wed Oct 05, 2016 6:03 pm
Forum: General Discussion
Topic: NICE says no to daclizumab (Zinbryta)
Replies: 1
Views: 817

Re: NICE says no to daclizumab (Zinbryta)

In the appraisal consultation document published on the NICE website, the appraisal committee's preliminary recommendation states: Daclizumab is not recommended within its marketing authorisation for treating relapsing forms of multiple sclerosis in adults... Read more - http://www.ms-uk.org/nice-s...
by HarryZ
Wed Oct 05, 2016 5:22 am
Forum: General Discussion
Topic: PEOPLE OVER 70 WITH MS
Replies: 22
Views: 15772

Re: PEOPLE OVER 70 WITH MS

Hi Leonard You're right, most doctors don't know that DMDs don't work for PPMS, even a few neurologists. Is "chemo/HSCT" the process where they kill off your immune system with chemo and then reboot it with stem cells? You could probably get it done in Mexico or other 3rd world country. But I'm not...
by HarryZ
Tue Jun 07, 2016 5:44 pm
Forum: Ocrevus (Ocrelizumab)
Topic: Ocrelizumab (Ocrevus) not the answer in PPMS - far from it.
Replies: 17
Views: 20745

Re: Ocrelizumab (Ocrevus) not the answer in PPMS - far from

The theory (and it is no more than a theory) that MS has anything to do with an overactive immune system, will, soon I hope, be consigned to history's rubbish-heap. It may dawn on people that there is a good reason why decades of money-spending have had little effect. There is good, powerful scient...
by HarryZ
Sun May 22, 2016 4:55 am
Forum: Tysabri (Antegren or Natalizumab)
Topic: PML Cases Now Reach 486
Replies: 7
Views: 5081

Re: PML Cases Now Reach 486

Hey Cheer,

Yep, pretty close to fossil status these days :-)

What is also alarming when it comes to PML is that these drug companies continue to pump out new monoclonal antibody MS medications...and we all know what they will do to the immune system!
by HarryZ
Thu May 19, 2016 4:54 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: PML Cases Now Reach 486
Replies: 7
Views: 5081

Re: PML Cases Now Reach 486

I wonder which one is more accurate. Is biogen intentionally suppressing numbers, or does ehealthme.com simply take every report as golden without any kind of verification? -cent I am back after a VERY long absence and not by my choice. It is a long story of which I won't bore you with but I am rea...
by HarryZ
Thu Aug 28, 2014 6:35 am
Forum: General Discussion
Topic: New study: blood flow, brain atrophy & MS
Replies: 11
Views: 1826

Re: New study: blood flow, brain atrophy & MS

Patients with MS had a significant decrease of cerebrovascular reactivity compared with controls. This decrease in CRV correlated to gray matter atrophy, but did not correlate with white matter lesions. Cheer, This info will not bode well with the white matter lesion measurements that the main MS d...
by HarryZ
Mon Aug 25, 2014 4:59 pm
Forum: General Discussion
Topic: How many of you have Amalgam fillings
Replies: 20
Views: 3015

Re: How many of you have Amalgam fillings

I had a urine test to check the mercury but it was within the limits so they never considered that to be a problem. I had hair analysis done and the mercury didn't seem to be a problem So how did you come to the conclusion that you had too much mercury in your system from the amalgam fillings? They...