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Message to Mags. I just saw your postings about Bell's. As a doctor specialising in LDN and ecological medicine, it strikes me as most unlikely that the Bell's had anything to do wit LDN. I( was most likely either a manifestation of MS or an un-related attack of palsy. The dose was tiny, the time s...

Hi all, just a quick update :) I came off the LDN for a couple of months, then started again gradually, first on 0.5 ml for a week, then 0.75ml for a week, then 1,ml, 1.5ml, and 2.5ml per week. I am currently on 2.5ml and hoping to up this soon. The Bells Palsy settled after 2 and a half months and ...

leetz wrote:i am about a little over a month in...2.5mg LDN second time taking this, the only problem i ever had was at over 3mg's the spasticity is worse...but that is it for me...keep with it...

Thanks Leetz, I did stop it, but am going to give it another go next week, wish me luck

Mags x

Hi Esta, Lovely to hear from you again, it is a while since we had our adventure in Poland :) The Bells is driving me mad! My face is recovering a little but I am left with double vision and terrible balance issues, have not left the house in ages :( I agree that it may not be the LDN, I had to go i...

Hi, I started LDN at 1mg about three weeks ago, three days after this I developed Bells Palsy, along with this I have extreme fatigue and dizzyness. The Bells is still with me but is not as bad as the first couple of weeks, I have some movement in my face but still need a straw for drinking. I wonde...

Congratulations Carrie!

I hope that things continue to improve, keep us updated.

Mags x

Thanks for the update, wishing you more improvements as you go

Mags x

Hello again, just checking in after my appointment with the vascular surgeon. He was very interested, said he needed to read up on CCSVI and said that he was interested in being part of the research. He also said that he would take charge of my after care if that is what I wanted, what a result!!! I...

hi mags i'm not the person to ask about pacience, but congrats on this new method. i sincerely hope it all works out. i'm off for a check up on my stent at the end of the month. hope all is well. we can compare changes in a stent vs larger ballooning. i wasn't offered that...sounds way better. but,...

OK I remember putting an update on here and I received a reply, but can't find any of it! I think that there is a problem with the forum. I will check back later to see if it has reappreared, if not I need to try to remember what I put

Whoever replied... can you help me? Mags x

Good stuff mags. You restenosed and you knew it (and you were right) ... and another procedure delivered more results. Huh ... who would have guessed? :lol: As for the feelings in your arm ... sounds similar to what my wife said ... that she could feel things (like bloodflow returning and different...

Hi everyone, Just a quick check in as I need some sleep :) I got back from Poland yesterday. Everything was a little hectic there... I arrived on Wednesday and went to see Professor Simka on Thursday. He told me that there was reflux throughout the whole of my LJV and it appeared that I had restenos...

esta wrote:hi mags
all i can say is HOPE is the word...its our future!!!!!!! good luckm and can hardly wait for the details!

Thanks Esta,

Yes I am with you on that one, HOPE is what keeps me going

Take care,

Mags x

Thanks very much, CCSVIHusband, yes you got it right I am excited :) NHE, CentreofGravity, Carrie and Prairegirl, thank you also for your kind words. :) Pinda, PS One of the panel at the Glasgow conference said that having the procedure redone during the 6 month period (+- 1 month) is probably the b...

Cece wrote: good luck, Mags!

Thanks Cece x