Search found 39 matches

by Val1964
Sun Oct 24, 2010 1:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Blood Pressure
Replies: 5
Views: 2652

Hi, my Blood pressure is very low too. I am not dizzy but I feel light headed all the time and after my first liberation procedure I felt great for 18 days until I restenosed.
Val :D
by Val1964
Mon Aug 02, 2010 9:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 230112

Hi Nico & All,
I am so sorry to hear that you have restenosed. But I am glad you are letting us know how you are doing. I had my procedure on July 13th and I know I was only one of six that had it done. Does anyone know how the other 5 are doing?
Be Sweet
val
:?:
by Val1964
Fri Jul 30, 2010 10:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 230112

Hi Nico,
I am so happy for you. :D My last procedure didn't go so well. i am feeling pretty fed up.
But I am still researching and hoping.
check your pm
Be Sweet
Val
by Val1964
Sat Jul 17, 2010 2:39 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 230112

I all,
Thought I would write to see how everyone is doing ?How did everyones procedures go last week ?
by Val1964
Thu Jul 15, 2010 6:02 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 230112

Helen,
Thanks for that , I will just start saving for another trip down. It is so frustrating being up here in north Qld.
Val :D
by Val1964
Wed Jul 14, 2010 1:37 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 230112

Hi All,
well I have been thinking about my venogram and am wondering if nothing wrong was found could there be an obscure vein some place that is being missed ? If anyone has any idea's please let me know.
Val :(
by Val1964
Tue Jul 13, 2010 9:50 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 230112

Hi all,
I had my procedure yesterday and I was told they are doing a double blind study. my procedure hasn't done anything good for me this time.I am feeling very down.
Val :(
by Val1964
Wed Jul 07, 2010 1:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 230112

gI aLL,
tHAT IS GREAT NEWS mARK. ME i GET REDONE THE 13TH OF JULY , SO ANOTHER WHIRLWIND TRIP TO MELB. & THEN FLY BACK TO NORTH qLD.
bE SWEET eVERYONE
vAL :)
by Val1964
Wed Jun 23, 2010 5:12 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 230112

venogram

Hi everyone,
well I am back in Melb. on the 13th july for another venogram.
val
by Val1964
Tue May 25, 2010 11:30 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 230112

Good job. Nico :)
by Val1964
Sun May 16, 2010 2:02 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 230112

Helen,
I am so glad you wrote that because that is me too ,i am gonna have another procedure. My gp & husband don't beleive this procedure works I told them I know it does.
Val
by Val1964
Fri May 14, 2010 6:48 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 230112

thanks for that but I see Prof. T I'll ask him
val
by Val1964
Fri May 14, 2010 5:56 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 230112

Thanks for that lyon, because I will be having my procedure done again maybe they will use that? :D
val
by Val1964
Fri May 14, 2010 5:24 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 230112

Hi Everyone,
I don't mean to sound ignorant but what is & does the cutting balloon do ?
Val
by Val1964
Fri May 07, 2010 6:16 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 230112

Liberation procedure

Hi Everyone,
I thought I would let everyone know all my symptoms have returned. My Gp swears my feeling good for 18 days after the procedure was just the way M.S acts. Noway I felt better than I have in years. Blesebo don't think so
I hope everyone else is doing good.
Best wishes
Val

Go to advanced search