This Is MS Multiple Sclerosis Knowledge & Support Community

Hi cola

We sent him 3 emails. The first time we telephoned he took our name down, and the other two times he didnt even ask for our name. He told us that he would reply to our emails.

I dont think it would hurt to give him a ring if you havent heard from him

Best of luck

N xxx

Val

That was my original question. No one has answered yet. I am not sure who we will go with. I am sure they are both just as good.

Nx

I am from england so I called the no. 00 48 501 444 784 I presume his no. is 501 444 784. You'll have to find out the appropriate international dialling code. If you still cant get through, I'll have a check of it for you. He seems a nice man. He told us at the time that its an experimental procedur...

Grammastang - we didnt even get an email to say more information to follow. We actually sent a couple of emails to him and spoke to him 3 times back in January and February. His email gave us details of how much it all costs and what the itinerary would be and said we were booked in for end of March...

Hi all We have received an email from Dr Kostecki today listing prices etc and informing us that we are booked in end of March. Has anybody else been contacted from him? We are also on the waiting list with Dr Grozdinski in June for procedure. If you had a choice, who would you choose? Dr Kostecki o...

Thats great you got an email from Dr Kostecki. That's more than what we got. I telephoned him couple of weeks ago and he told us that its still an experimental procedure and that he would probably be ready end of March. He seems to be putting the date back because we telephoned him end of Jan and he...

Sunlounger Thats who we went to see last week. Dr Paul Crowe. At the time, he didnt want us to pass his details on. We are still awaiting his report. He told us that he's preparing a price plan for both MRIs and Dopplers. He is using Dr Zamboni and Dr Haacke's protocol. He is such a nice guy and rea...

Hi L We are seeing him at the end of next week. He is aware and interested in the CCSVI theory, but is not convinced by it. He told us that he will keep an open mind etc. and has already tested a couple of people, but have got negative results from it. I think it would be inappropriate to post his d...

Hello all

My husband has FINALLY got an appointment with an interventional radiologist next week in the UK and he is currently taking LDN and aspirin for his MS symptoms.

Would anybody happen to know if taking these drugs actually affects the tests that are carried out for CCSVI.

Thanks

Nx

Sorry, I have no idea how to host it online and to do a link from that. Also the document is a pdf scanned document. I'm quite useless when it comes to things like computers. Sorry. Dont worry if its too much bother. I thought it would be interesting for people to read a document that pre-dates the ...

Hiya

I have an interesting document I want to share and to attach as a CCSVI thread, but am not sure how to do it. Its saved on the hard drive of my computer.

Please help.

A not so computer literate Ngocky

Thanks

Nx

Thats brilliant news lilaclomax. We look forward to hearing all the details. We dont mind travelling either.

Perky and Claire. Its so true about the UK forums. Hardly anybody talks about it on there. Some people dont even know what it is yet which is such a shame.

Nx

Hello all I just wanted to let the people know who are waiting for Dr Kostecki's reply that we have spoken to him today. He told us that he is having problems with his MRI facilities and he is in the process of looking for facilities elsewhere. He said that it will take him about 3 weeks. He also me...

Hello there We telephoned Dr Kostecki last week and he told us to ring back in a couple of weeks as his MRI was broken. He seems a very nice man and we will ring him again soon. Not heard from Dr Simka yet, but we understand that he is very busy. We also emailed the Dr in Bulgaria and his email addr...

Chris What a bummer? We've not received the letter yet, but no doubt we will in the next few weeks. Did you contact Dr Kostecki by any chance? We emailed him but so far havent received a response. Not sure whether they are part of the same team or not, but we will have to wait and see. Back to the d...