Search found 51 matches

by annbbe
Wed Nov 19, 2014 9:26 pm
Forum: Low Dose Naltrexone
Topic: 20th day on LDN and...
Replies: 6
Views: 3808

Re: 20th day on LDN and...

Wow...I tried LDN in dose of 3 mg and...I don't feel any change. Anything...
by annbbe
Wed Nov 19, 2014 4:30 am
Forum: Low Dose Naltrexone
Topic: 20th day on LDN and...
Replies: 6
Views: 3808

Re: 20th day on LDN and...

Dear Annbbe; You seem to connect your feeling worse with the use of LDN, and you're statement that you're still on "just 1.5 mg" seems to suggest that you believe a higher dose will of necessity produce a more pronounced ill effect. This is not the standard with LDN. It is more likely that your cur...
by annbbe
Wed Nov 19, 2014 12:52 am
Forum: Low Dose Naltrexone
Topic: 20th day on LDN and...
Replies: 6
Views: 3808

Re: 20th day on LDN and...

Ann are you still with the clinical trial with Avonex? Ldn doesn't go well with it and furthermore Saccharine is a poor filler with it. I haven't taken any drug for 2,5 years. I left Avonex trial because it was very bad for me. I am not allergic on Saccharine. Why is it poor? I heard that 1,5 mg be...
by annbbe
Tue Nov 18, 2014 6:10 am
Forum: Low Dose Naltrexone
Topic: Side Effects while on LDN...
Replies: 54
Views: 75111

Re: Side Effects while on LDN...

"I had side effects while on LDN treatment for Multiple Sclerosis. I am _33__ years old I am female. I have MS for 14 years I tried LDN for 20 days long I took 1,5 mg's per night I obtained my LDN from Switzerland If I know it, the filler used was sacharine My doctor was -in ______ I have the follow...
by annbbe
Mon Nov 17, 2014 11:52 pm
Forum: Low Dose Naltrexone
Topic: Are these LDN side effects?
Replies: 13
Views: 19464

Re: Are these LDN side effects?

I am three weeks on LDN and still exteremly weak...
by annbbe
Mon Nov 17, 2014 9:31 am
Forum: Low Dose Naltrexone
Topic: 20th day on LDN and...
Replies: 6
Views: 3808

20th day on LDN and...

...and everything is getting worse than it was before LDN...I am happy that I still see...etc. because it goes down very quickly. I heard that the immune system has to restart but it is so weird that I feel nothing good, and still I am just on 1,5mg...
by annbbe
Wed Nov 12, 2014 11:18 am
Forum: Daily Life
Topic: I am wondering how much MS will limit my future
Replies: 7
Views: 3951

Re: I am wondering how much MS will limit my future

Hi, it is exteremly hard to say what future would give you. Nobody, even 100% healthy can't say what future gives you. Well, when I got ms, i was 19. My whole adult life I am ill. This is the life. Maybe harder sometimes, but you never know if it is really bad for you. Seriously, nowadays medicine g...
by annbbe
Wed Nov 12, 2014 4:17 am
Forum: Low Dose Naltrexone
Topic: Are these LDN side effects?
Replies: 13
Views: 19464

Re:

Two weeks is so little time to consider LDN can't do anything for you, give it more than a month and see if it works, in wife's case she needed more than 1-1,5 months to stabilize and feel the difference, as you the first few weeks she was tired, exhausted etc! DIM, thanks for your positives words....
by annbbe
Sat Nov 01, 2014 6:21 am
Forum: Low Dose Naltrexone
Topic: Experiences with Low Dose Naltrexone
Replies: 70
Views: 59694

Re: Experiences with Low Dose Naltrexone

Hi, I started LDN four days ago, I've already taken three doses of 1,5 mg Naltrexone. I feel weaker than usual. Nothing new is bad with my neurology, but I simply don't have any force. My MS status is really bad. I am not waking outside at all, maybe on a wheelchair...but alone I can't walk, I have ...
by annbbe
Sat Feb 18, 2012 8:27 am
Forum: Avonex
Topic: after what time?
Replies: 2
Views: 5391

after what time?

Hi everybody. I switched from Tysabri to Avonex. Could you please tell me after what time of taking it I could feel a bit better? 1 INJECT aVONEX once a week. yesterday I had my 10th injection (sooo...it's 2,5 months already). I am not sure if Avonex works for me...
by annbbe
Sun Dec 11, 2011 2:24 pm
Forum: Drug Pipeline
Topic: Daclizumab Phase-III started
Replies: 16
Views: 8175

Re: Daclizumab Phase-III started

Hi,
I had my first injection of daclizumab or placebo last friday. The same day I got avonex or placebo. I have no idea what am I taking. Which one is a real drug? No idea.
by annbbe
Tue May 31, 2011 10:22 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Relapses after the liberation treatment?
Replies: 56
Views: 12576

what you say?

Hi, i am after one liberation, still no restenosis (and i did the procedure more than a year ago!), but...i got a relapse, and from yesterday till friday i am on steroids...
And? What you say?
by annbbe
Sat May 21, 2011 5:07 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: some numbers...
Replies: 2
Views: 1378

some numbers...

Hi, TIMS! I'd like to talk a bit about my MS/CCSVI story. I had only one procedure done almost 16 mnths ago. My vein is still OK. For over 2 years I have been relapse free. 4 mnths ago I decided to go off Tysabri (after 2 years of taking it). I was diagnosed 10 years ago. My EDSS is 4. I am not sure...
by annbbe
Sat Apr 02, 2011 4:09 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: annbbe - second day after procedure
Replies: 66
Views: 15989

Hi, I went to Katowice, Euromedic yesterday. It turned out, that 14 months after procedure, my veins are still open.

Wow!

It is so great to be in those 45% of patiens who don't have restenosis so far;).

Next control in a year!:)

Take care!
by annbbe
Fri Jan 21, 2011 11:27 am
Forum: Tysabri (Antegren or Natalizumab)
Topic: 20th tysabri
Replies: 0
Views: 1493

20th tysabri

Hi, i am on Tysabri since jan. 2009. I don't take it regularly - lack of money... I had one 3 month period of drug vacation, i took drug after 2 month often.. I had my 20th infusion today. It's funny - while everybody is considering going off of tysabri, i decided to take it regularly because it giv...