This Is MS Multiple Sclerosis Knowledge & Support Community

Do you know when you might be permitted to perform testing and treatment again? I live in the MW and nobody seems interested in CCSVI, I've written teaching hospitals, universities even a VS/IR clinic (VIRChicaco) all in or near Chicago also St. Louis University. The clinic did say they were going t...

It's because neuro's and MS societies don't want us to get better, they are supported my big pharma and patients who have to rely on drugs!

I know it wasn't caused by a migrating stent, that was a gentleman who required open heart surgery, I'm just saying that I for one want the procedure done, even if I could feel 10% better, it would be worth it. I would only have angioplasty though until they perfected venous stents, and they will!

Rest in Peace Holly! Will they have her family quoted as saying that CCSVI had nothing to do with her death, as they said after her death. I'm sure stents migrate a lot, also, this can't be the first time, or can it? The fact is the procedure IS helping people, and we MSers want to decide for oursel...

Thanks Rosegirl, I appreciate your advice. I just want to see if my left jugular vein is being pushed at by my vertebra because it very obviously sticks out on the left side, two PT's have told me so, and I do exercises to help but from using my walker my muscles on the right side of my neck have sh...

This is the way to go before WE get more disabled. I made an appointment with a vascular surgeon for Mar. 23 and am bringing my laptop with me, (a tip I got from a facebook friend and fellow MSer) I may even mail some papers to him ahead of time? Get him use to what WANT and EXPECT of him at my appo...