Search found 481 matches

by Zeureka
Fri Jun 03, 2011 9:10 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Relapses after the liberation treatment?
Replies: 56
Views: 12308

Re: what you say?

Hi, i am after one liberation, still no restenosis (and i did the procedure more than a year ago!), but...i got a relapse, and from yesterday till friday i am on steroids... And? What you say? Hi ann, I'd say CCSVI plays overall a big part of a preventative role but there are unfortunately still ot...
by Zeureka
Mon Mar 07, 2011 1:44 pm
Forum: Stem Cells
Topic: Non-myeloablative HSCT in Israel (CTCI clinic)
Replies: 6
Views: 6197

Wow great list thanks Ik. ! Would you know if these trials accept also non-US citizens?
by Zeureka
Mon Mar 07, 2011 12:52 pm
Forum: Stem Cells
Topic: Non-myeloablative HSCT in Israel (CTCI clinic)
Replies: 6
Views: 6197

Thanks a lot Ik. that's very helpful to know. See you also did CCSVI - me as well. Did your old symptoms really come back after that or just did not have any effect in your case? Know I'm not in the right forum to ask that question...but saw it below in your footnote...I feel much less tired (as reg...
by Zeureka
Mon Mar 07, 2011 3:21 am
Forum: Stem Cells
Topic: Got it done - Dr. Slavin's Protocol
Replies: 56
Views: 17675

Thanks a lot Packo for informing us based on the procedure you had in Hadassah. The Hadassah clinic yesterday informed me as follows: "Thank you for contacting Hadassah University Hospital center, Jerusalem, Israel....Regarding Multiple Sclerosis treatment - at the moment a stem cell therapy is not ...
by Zeureka
Sun Mar 06, 2011 1:06 pm
Forum: Stem Cells
Topic: Got it done - Dr. Slavin's Protocol
Replies: 56
Views: 17675

I don't have an EDSS score. I've not yet settled on a primary care physician. The infusion was in Athens, because Dr. Slavin & his team aren't allowed to administer the infusion in Israel at the moment. It's a political thing. Dr. Slavin's clinic is in Tel Aviv, and he & his team do the bone marrow...
by Zeureka
Sun Mar 06, 2011 8:12 am
Forum: Stem Cells
Topic: Non-myeloablative HSCT in Israel (CTCI clinic)
Replies: 6
Views: 6197

Non-myeloablative HSCT in Israel (CTCI clinic)

I have contacted the clinic of Prof Shimon Slavin for first information on the non-myeloablative haemopoietic stem-cell transplantation (HSCT) method for patients with Multiple Sclerosis. (Website: http://www.CTCIcenter.com) The seems standard answer I received by e-mail was either to take an appoin...
by Zeureka
Wed Mar 02, 2011 7:58 am
Forum: Stem Cells
Topic: now this is pretty amazing...
Replies: 5
Views: 1866

Stem Cell Company Awarded Patent For Generating Embryonic Stem Cells Without Embryo Destruction Wednesday, February 23, 2011 - Stem Cell Business News Advanced Cell Technology, Inc. (OTC Bulletin Board: ACTC), of Marlborough, Mass., said on February 23 that it has been issued a U.S. patent on its “s...
by Zeureka
Tue Mar 01, 2011 3:03 pm
Forum: Stem Cells
Topic: 1 year and still cured of MS
Replies: 31
Views: 10245

Hi George
Congrats for your improvements :) This treatment sounds very interesting.
Does the Univ hospital in Heidelberg offer it to MS patients on a general private basis or were you included in a clinical trial? (sorry if your blog might reveal that and I did not see it yet).

Thanks, Steffi
by Zeureka
Tue Mar 01, 2011 2:28 pm
Forum: Stem Cells
Topic: now this is pretty amazing...
Replies: 5
Views: 1866

Just also read today an interesting article on that site on a new patent for generating embrionic stem cells without embryo destruction

http://www.stemcellresearchnews.com/abs ... a=2506&z=9
by Zeureka
Sun Jan 23, 2011 9:32 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: For those with stents in jugulars...
Replies: 25
Views: 4328

Let me ask you another question then... For those who had thrombosis, were you prescribed with anticoagulants after the first intervention (when the stent was placed)? Or does thrombosis occur even when you're on anticoagulants? Spiff Unfortunately in the cases I heard of it even happened with anti...
by Zeureka
Fri Jan 14, 2011 4:44 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: AM I READING THIS CORRECTLY !!!
Replies: 29
Views: 4751

Absolutely agree, their strategy is delay delay delay...
by Zeureka
Fri Jan 14, 2011 4:25 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: For those with stents in jugulars...
Replies: 25
Views: 4328

Hi Cece nice to hear from you :D. Right, integration earlier but do not know precisely timing for risk of thrombosis. Mentioned this 6 months figure since know Dr Beelen in Belgium in some cases of patients with thrombosis and stent reliberation has prescribed blood thinners for 6 months-1 year. Usu...
by Zeureka
Fri Jan 14, 2011 3:56 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: AM I READING THIS CORRECTLY !!!
Replies: 29
Views: 4751

obviously the pharma will like to present that study isolated though. As they will enjoy presenting the study results financed by the Italian MS association (and from which Zamboni - at first envisaged to join the scientific committee - dropped out due to wrong measurement parameters). The sad story...
by Zeureka
Fri Jan 14, 2011 3:44 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: For those with stents in jugulars...
Replies: 25
Views: 4328

Know two friends with stent that got thrombosis. Even after intervention to liberate the stent again, thrombosis again :( blood thinners for 6 months until the stent is integrated seem to be crucial in these cases. The biodegradable stents that dissolve after 1 year seem to be maybe a good solution ...
by Zeureka
Sun Nov 28, 2010 2:07 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: fiddler finally flying... to Poland
Replies: 118
Views: 18858

Hi Ted ! That's wonderful news and so nice to hear from you again!

Same for me for the fatigue aspect (after 6 months) and can only share what you say about quality of life. And about CCSVI-tracking.com: seems then that we are joining forces on the fatigue and quality of life curve there :D