Search found 16 matches

by Hopeful10
Mon Sep 12, 2011 10:31 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Dake at CIRSE
Replies: 43
Views: 7723

Re: Dr. Dake at CIRSE

In addition to the pro/con debate Cheer posted about at the beginning of the thread (with Dake, Doepp, and a couple others), there are also three CCSVI poster presentations at the conference: P-237 - Evaluation of hemodynamic changes using dynamic susceptibility contrast-enhanced (DSC) MRI in patien...
by Hopeful10
Mon Aug 15, 2011 6:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2698533

Dr. Sclafani, I asked a question a little while back that I think got lost in an avalanche of subsequent questions. I hope you don't mind if I ask the question again. My recollection is that studies have shown that approximately 10-15% of the population has no valves in either one or both internal j...
by Hopeful10
Thu Aug 04, 2011 10:14 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2698533

Dr. Sclafani, If I remember correctly, approximately 10% of the population doesn't have valves in their internal jugular veins. Since problematic valves seem to be a primary cause of CCSVI, I was wondering if you've had any CCSVI patients without IJV valves, and if so, if they number less than 10% o...
by Hopeful10
Mon Mar 07, 2011 9:42 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Concerns raised about controversial MS treatment
Replies: 37
Views: 10747

Wow, what a terrible hatchet job by the reporter. She references the U.S. study (at BNAC) that found over half of MSers have CCSVI, but neglects to state two additional important pieces of information from the same BNAC study: about a quarter of non-MSers were found to have CCSVI , and yet the assoc...
by Hopeful10
Tue Jan 11, 2011 10:32 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: "whining about neurologists"
Replies: 65
Views: 15422

Re: "whining about neurologists"

Cece wrote:Some high points from his ranting....

* Zivadinov is no longer behind this
Does anyone know if Cece's neuro is right about Zivadinov no longer supporting CCSVI? And if that in fact is the case, has Zivadinov explained why not?
by Hopeful10
Sun Aug 22, 2010 12:58 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2698533

Dr. S, I hope you're having a wonderful time in the Adirondacks! When you get back and have a chance to answer, here are my questions for you (and thank you again for taking so much time to educate and reassure us): 1. Professor Zamboni found almost no restenosis in the azygous veins of the CCSVI pa...
by Hopeful10
Mon Jul 26, 2010 3:52 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Teva Falls Most in 21 Months...
Replies: 12
Views: 3530

Teva is being sued as well by the company that originally developed the molecule alleging that Copaxone is effective ONLY if taken once a week, or even once a month, that TEVA is pushing once a day only to boost their profits - if anyone's interested I can post the original link - tho I got slammed...
by Hopeful10
Mon Jun 14, 2010 2:09 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New Wheelchair Kamikaze Post on the Current State of CCSVI
Replies: 62
Views: 14716

If your kitchen sink was backed up, but not affecting any other item in your kitchen, then only a plumber would be called. If that backed up sink overflowed and shorted out the electrical outlets in your kitchen, you'd need to call an electrician. Hey, good (counter)analogy. It is a good analogy, b...
by Hopeful10
Fri Jun 11, 2010 1:14 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: NMSS CCSVI Grant Awards to Be Announced This Afternoon
Replies: 69
Views: 19407

Canada has only committed $700,000.00 and they have four of the seven projects. Is the 2.4 million going to be equally distributed among the seven projects? No. If you click on the "details" link for each study, you'll find that the four Canadian studies are receiving a total of C$700,000...
by Hopeful10
Fri Jun 11, 2010 1:02 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: NMSS CCSVI Grant Awards to Be Announced This Afternoon
Replies: 69
Views: 19407

I'm am afraid that these studies are going to be farces like the German study. First, nearly all of these studies are led solely by neurologists. Instead, they should at the very least have radiologists or vascular surgeons either leading or being co-leaders of the study. Second, the quotes from man...
by Hopeful10
Fri Mar 26, 2010 9:03 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2698533

Dr. Sclafani,

Thank you again for your noble willingness to educate us.
by Hopeful10
Thu Mar 25, 2010 10:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2698533

Dr. Sclafani,

Thank you for the quick response.
by Hopeful10
Thu Mar 25, 2010 5:13 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2698533

Re: DrSclafani answers some questions

Dr. Sclafani,

I want to express my gratitude for your willingness to take your precious time and share your knowledge and expertise with those of us dealing with MS.
by Hopeful10
Thu Jan 21, 2010 10:15 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 1/3 of all people have internal jugular valve incompetence
Replies: 22
Views: 7923

Ozark,

Look at Table 3 in the Zamboni paper you linked, and focus on the column regarding how the controls fared in the 5 parameters. The controls had almost no blood flow problems, as measured by any of the 5 parameters.
by Hopeful10
Thu Jan 21, 2010 10:06 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 1/3 of all people have internal jugular valve incompetence
Replies: 22
Views: 7923

I think I may have found the answer to my own question, thanks to an older post by MRhodes40. It seems that the TGA research (unlike Zamboni) may use valsalva maneuvers to increase the likelihood of finding valve incompetence: That one used valsalva to assess for reflux, not the test Z uses so the 4...

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