Search found 28 matches

by JOJOB
Tue Jun 15, 2010 5:08 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: AMEDS Poland?
Replies: 70
Views: 14905

All the best lOUISE3, :D
Thinking of you !!

I can't wait to know how it went... :D
by JOJOB
Fri Jun 11, 2010 6:48 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Ever heard of immune or venous sep ??
Replies: 3
Views: 1429

Yes, somehow she's thinking that there are two kinds of MS. Venous ones and the other ones as we know them.
by JOJOB
Fri Jun 11, 2010 6:45 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Ever heard of immune or venous sep ??
Replies: 3
Views: 1429

SORRY !!!

SEP in french is MS. I just mixed the two languages ! How silly of me :cry:
by JOJOB
Fri Jun 11, 2010 4:35 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1593929

Very, very sad news indeed !!!

I am so sorry and angry when this happens. Poor Bridget !
by JOJOB
Fri Jun 11, 2010 1:54 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Ever heard of immune or venous sep ??
Replies: 3
Views: 1429

Ever heard of immune or venous sep ??

Have you ever heard of venous or immune sep ?? I went and see an experienced interventionist radiologist and she told me that she thought was existing 2 kinds of seps: immune and venous seps. She told me that my sep was not a venous but an immune sep which means that my jugs were ok but my body was ...
by JOJOB
Mon Jun 07, 2010 1:30 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: AMEDS Poland?
Replies: 70
Views: 14905

I have registered with AMEDS end of february and I just had a date 1st september. Reconfirmed the date by e-mail to AMEDS.

That's all heard nothing else about them !!!
by JOJOB
Sun Jun 06, 2010 5:47 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Francophones: suivis des traitements du CCSVI
Replies: 6
Views: 10721

SUIVIS CCSVI : 15/03/10 Nom : jojob Ville/Province: Loir ert cher/France Homme/Femme: femme Age: 44 Nombre d'années avec la SP: 5 ans (depuis diagnostic) Forme de SP (RR,PP,PS ou autre): RR AVANT INTERVENTION Symptômes SP: Fatigue, problèmes équilibre, troubles de sensibilité des pieds jusqu'au cou,...
by JOJOB
Wed May 19, 2010 5:04 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1593929

Hello Dr Sclafani, I have myself a question to ask you. I had a doppler in Paris with DR...., He did not find anything specially wrong with my jugulars except for the valve not working properly in my left jug. He told me to sleep in the inclined position. He also told me to come back to him in the ...
by JOJOB
Tue May 18, 2010 2:01 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1593929

Hello Dr Sclafani, I have myself a question to ask you. I had a doppler in Paris with DR...., He did not find anything specially wrong with my jugulars except for the valve not working properly in my left jug. He told me to sleep in the inclined position. He also told me to come back to him in the n...
by JOJOB
Tue May 18, 2010 1:25 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1593929

Very interesting indeed !!!
by JOJOB
Mon May 10, 2010 4:53 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: AMEDS: WHAT INFO DO WE HAVE ON THEM?
Replies: 13
Views: 2204

Things are moving but very slowly :D
by JOJOB
Mon May 10, 2010 4:51 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: AMEDS Poland?
Replies: 70
Views: 14905

Hi everybody, I have pre- reconfirmed my interest in AMEDS about 2 weeks ago as they asked me to do so. They were supposed to contact me within 2 weeks and for now still nothing !!! I wait to see if something is happening ! I know that everything was suspended for about 10 days after the president d...
by JOJOB
Tue Mar 16, 2010 5:23 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New update on husband/ waste of time
Replies: 28
Views: 7411

Hello everybody, I went and see Dr Franceschi yesterday. He is someone very human and did the doppler without even asking anything; he said What can I do for you, and when I answered MS, he did the doppler straight away. Unfortuneately for me, he found virtually nothing: Right jugular: Normal Left j...
by JOJOB
Sat Mar 06, 2010 3:02 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in Bulgaria
Replies: 1107
Views: 202476

Thank you Erika for all these details;, It helps to know what to expect after the procedure. Even so, as you said everybody is different...
It still a guide for us.
by JOJOB
Fri Mar 05, 2010 5:39 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Who are the BIG names in CCSVI ?
Replies: 138
Views: 112768

Hello Brian,

Its good news but where did you hear from AMEDS ???

Never heard of it.

I look into it on the web to see, it looks like another interesting place to go to ..... :D :D :D

Jojob