This Is MS Multiple Sclerosis Knowledge & Support Community

Stem cells are something I will be getting every 4 months because it gives me such a boost. Are you traveling to another country every four months or having this done in the states? (assuming you are in the u.s. sorry if this is not the case.) I've never read about anyone doing stems so quickly. Ho...

Dignan, Could you, or maybe someone else, briefly explain the difference between autologous hematopoietic stem cells and mesenchymal stem cells? Autologous hematopoietic stem cell transplant refers to when the patient is the stem cell donor for the transplant. So, if the stem cells are taken from m...

Patients should push on two ends: MS societies and Neuros. These two bodies are the front liners and the most rigid and pushing is very easy. Talk to people who donate (public awareness, social networking ...). Let them donate for CCSVI research and follow up with the societies that their money was...

The first type to become widely available will be autologous hematopoietic stem cells. The most advanced trial is a phase 3 ( http://www.clinicaltrials.gov/ct2/show/NCT00273364 ), but it hasn't completed enrollment yet and is a 5 year study, so it would be at least 6 years until approval. There are...

My situation is opposite. I had almost no new symptoms, but 7 new lesions on my MRI last month. Five were enhanced (one with a ring and black hole). In addition, the first time a doctor mentioned M.S. to me was when I was having my first O.N. attack. The MRI at that time came out clean. Six months l...

I am a firm believer in Dr. Burt's protocol. Unfortunately, the first study only had about 20 patients. They had awesome results, but that number is kind of low to prove his theory. He's now working on a larger study which is randomized to track the patients who receive stem cells in order to compar...

After my last MRI showed five active lesions, my neurologist asked 'would you like to have your veins tested?'. I said 'sure!'. She assured me that the protocol had been given to the techs, but that I would be the second person at that facility to be tested (one of the mayo clinics). When I got ther...