Search found 52 matches

by SCGirl
Tue Mar 09, 2010 6:41 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI
Replies: 5
Views: 2231

Great news!! Keep us posted and good luck!!!!
by SCGirl
Tue Mar 09, 2010 5:19 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Angiogram and Venogram scheduled!
Replies: 25
Views: 5703

Angiogram and Venogram scheduled!

I finally found a doctor who is willing to help me. His specialty is neurointerventional radiology. He wants to schedule me within the next few weeks to have a venogram and an angiogram. I have read so much about MRV and Doppler on this forum, that I am curious as to who has had the two procedures d...
by SCGirl
Fri Mar 05, 2010 11:40 am
Forum: Humor
Topic: Seeking advice...
Replies: 2
Views: 2056

That's hilarious! :P
by SCGirl
Thu Mar 04, 2010 11:47 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Got call from Albany yesterday
Replies: 4
Views: 2497

Great news! I called and then e-mailed Megan about a month ago. Still patiently ( :? ) waiting for them to contact me. Keep us updated and best of luck!
by SCGirl
Tue Jan 26, 2010 10:00 am
Forum: Introductions
Topic: Hey from SC
Replies: 3
Views: 1616

Hey from SC

I am 38 and have been dealing with this dreaded disease for 4 years. I have been on 3 different drugs, not sure that any of them have helped. Right now, I have no symptoms except for foot drop... and this is threatening to cost me my job. I work in law enforcement and love my career. More importantl...
by SCGirl
Tue Jan 26, 2010 9:04 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Not a cure... what is ccsvi then?
Replies: 14
Views: 3381

So, is there ANY chance of me getting this procedure done?? I have tried to contact Stanford and Buffalo via e-mail.... to no avail. Any help?
by SCGirl
Tue Jan 26, 2010 8:55 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI- just the facts, ma'am
Replies: 114
Views: 123622

Okay, this is my first post... I have been contacting, or I should say, attempting to contact Stanford University and Buffalo for updates on the CCVSI surgeries. As much as I have read ( information overload !), I may be still going into this blindly, but no medicine so far seems to help and I am si...

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