This Is MS Multiple Sclerosis Knowledge & Support Community

I guess this is why we need to wait and get tested from someone who has been trained to look for it. Bummer! I hope this catches on fast.

Wow! This is so much to take in. If an angiogram showed my IJVs are ok, then does this mean that i do not have CCSVI? He only looked in my brain but if stenosis was in the neck, wouldn't he still see the problem in my brain too? Looks like it would be backed up. Zambonis paper said that 80 something...

yes mrsilky, i had an mrv first and the doc that did the angiogram said there were three places that he saw that looked narrow and that is why he did the sngiogram. he said the blood is moving really good through the jugulars. On to the azygos. Does anyone know exactly where that vein is? I know it ...

Well guys, I had an angiogram Tuesday and I am confused, heartbroken, and just don't get it. It showed no stenosis in my jugulars in the brain. He only did my brain though. He said the blood flow was perfect in my jugulars. Even if a stenosis was in my neck, wouldn't the blood flow still be messed u...

mrsilkykat, I am confused also. I guess I will know more Tuesday. This guy didn't act like stenting was no big deal. ???

Hey guys. My angiogram is not until this Tuesday. Sorry for any confusion. Kat, that was/is my question too. If this is done normally, then why do we even need to use the term CCSVI? The doctor said that stenting these veins is not normal but he has done it many times. I will just have to see what h...

Hi berries, my guy hasn't even really heard of CCSVI so he is just treating me like every other patient. He said he has done thousands of stents in these veins and it is no problem. It is probably better that he goes his way for insurance purposes since CCSVI is not proven yet. I will keep you poste...

I also had a MRV and the interventional radiologist/neurosurgeon (he is both) wants to do an angiogram on Tuesday. He said depending what he finds, he will probably do stents. He said angiogram is better than doppler. I haven't heard of anyone having this test yet so berries, you are the first. I am...