This Is MS Multiple Sclerosis Knowledge & Support Community

o that is so sad! how in the world can people discover this too tiny veins issue in advance?

Is there anyone at this point in Massachusetts doing CCSVI treatment?

Hi Reneelucia, Thanks for your words. Ok, so, i did well for the first three weeks (as I describe in my previous post). Fourth and Fifth week I found myself still very able to walk, but insomnia started to kick in, and so did brain fog. It was refreshing to be in mid-summer and be able to walk and s...

Hi! Well, I am waiting for my doppler of neck veins in Aug. In the meantime, I started Ampyra 26 days ago. I've skipped maybe 5 doses since then. From reading up on Ampyra this seems like the most toxic med yet, but I must attest to its efficacy!!! I have just survived a week of a massive heat wave ...

Hi! I also want to point out about the thyroid: I came across a study out of a neuro journal in Spain dd around 2007 (sorry, fuzzy memory) that stated that people with "autoimmune" disease have an entirely different measurement for what is healthy thyroid hormone levels. I think it is rela...

Cece wrote: Am I right that optic neuritis is more common early in the m.s. process and less common later? That it "burns out" and ceases to be a problem for some? Is this because of the widening of the ventricular area in the brain, as m.s/ccsvi progresses, so then there is a place for th...

I just want to point out that I too have had low body temp my whole life - as a child docs always commented on this (in light of the ccsvi it is also interesting to note that as a child docs also commented on my unusually low blood pressure). But all blood tests always came back as "normal"...