Search found 201 matches

by coach
Fri Dec 28, 2012 12:11 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 537202

Re: CCSVI and CCVBP

it's been awhile since I've posted. New SXs i am having are numbness in pelvic area pubic area to be spefic, hoarseness,lack of appeite, pressure behind eyes. Stiff neck, Not all the time but annoying I am confused. Seems like I am having a pulling sensation in soft tissue around tailbone. Headaches...
by coach
Mon Dec 10, 2012 9:10 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Balance Wear Vest – My Story
Replies: 15
Views: 3991

Re: Balance Wear Vest – My Story

have balance issues. maybe this will help. milestep read about your ccsvi experience with ccsvi clinic in india on another thread. wanted to ask if any one had pain in calf muscles lower back pain and chronic constipation issues and never getting the sensation of hunger, not that I dont eat but just...
by coach
Thu Dec 06, 2012 4:27 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 537202

Re: CCSVI and CCVBP

the CINE mri I had a while back didn't show any abnomality.
by coach
Wed Dec 05, 2012 6:18 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 537202

Re: CCSVI and CCVBP

had hyperthyroidsim in past but not now. recent bloodwork shows I'm low in vit D and magnesium.
by coach
Wed Nov 07, 2012 7:39 am
Forum: General Discussion
Topic: PEOPLE OVER 70 WITH MS
Replies: 22
Views: 15846

Re: PEOPLE OVER 70 WITH MS

thought MS was usually dx'd in younger folk. am suprised by older folks that are dx'd with it. makes me wonder about what ms is. know it's mri profile and symptyoms . seems like it's a disease that's managed at best and seems to be a money maker for drug companies. fear mongering by docs seems to be...
by coach
Sat Nov 03, 2012 11:48 am
Forum: General Medications
Topic: Concerning pain medications...
Replies: 11
Views: 8187

Re: Concerning pain medications...

was taking gaba and still am. Vicodin helps but am worried about it being a narcotic. thought that wasn't supposed to help with neuropathic pain but does. quicker than gaba. wonder if I can get neuro to prescribe. mainly calf muscle pain and pain in bottom of feet and recently pain (numbness) in pel...
by coach
Fri Oct 12, 2012 7:52 am
Forum: General Discussion
Topic: Trying to Make Sense Out Of Odd Symptoms
Replies: 13
Views: 2332

Re: Trying to Make Sense Out Of Odd Symptoms

since daughter had same CIS i THINK ITS WORTH CHECKing with NS considering a dethering. the difficulty will be convincing one to try. the odd sx's like the occasional N&V out of nowhere. low back pain, pelvis pain, burning in bottom of feet loss of appetite. constipation for which I take stool softe...
by coach
Sat Oct 06, 2012 9:50 am
Forum: General Discussion
Topic: Trying to Make Sense Out Of Odd Symptoms
Replies: 13
Views: 2332

Re: Trying to Make Sense Out Of Odd Symptoms

No JL. tred to get in drs, rosa and danadian study. full.if interested one can go to WACMA WEBSITE ON WHICh I'VE poSTED AND THEY talk about these sx's. don't think i'm being unreasonable.
by coach
Thu Oct 04, 2012 8:44 am
Forum: General Discussion
Topic: Trying to Make Sense Out Of Odd Symptoms
Replies: 13
Views: 2332

Trying to Make Sense Out Of Odd Symptoms

Seems like I have somptoms hat are odd. At one time i HAD A CLEAR THIN FLUID THAT CAME OUT OF MY nOSE. csf? Don't have allergies or a cold. Can't remember when I've had a cold. Lack of appetite. Never get hungry. Seem to have increasing mobolity issues. No cog fog or disabling fatigue. Limited migra...
by coach
Tue Aug 21, 2012 4:54 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 537202

Re: CCSVI and CCVBP

Blossom I think your analogy is right on. Thanks.
by coach
Fri Aug 17, 2012 8:16 am
Forum: General Discussion
Topic: First time posting, hope someone can help.
Replies: 9
Views: 1304

Re: First time posting, hope someone can help.

forgot my upper body strength is much better than lower body. imuscle strength doesn't seem to be a problem but coordination is.
by coach
Fri Aug 17, 2012 7:33 am
Forum: General Discussion
Topic: First time posting, hope someone can help.
Replies: 9
Views: 1304

Re: First time posting, hope someone can help.

feel like you are licving in my body. told by m0y first neuro that I had inactive ms when i had my first mri in 2006. additional sx of hoarseness. ent dr. says nO PROBLEM WITH vocal cords no allergies or illness. no chiari. tici said i didn't have tc. tail bone is painful as well as lower back wonde...
by coach
Sat Jul 28, 2012 4:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 537202

Re: CCSVI and CCVBP

He didn't examine my pelvis. Was thinking more along the lne of occult tethered cord not the classic. Am having bilateral pain in calf muscles, chronic constipation, nausea with occasional vomiting, stiff neck, swaying when upright, cold hands and feet when upright, cluminess in my hands (more like ...
by coach
Fri Jul 27, 2012 6:32 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 537202

Re: CCSVI and CCVBP

I sent TCI my lumbar, cervical, and brain MRIs and said tethered cord questionaire.Said I didn't have tethered cord even though I have a lot of the symptoms.Haven't had MRI that go any lower than lumbar which show the first two sacral vertebrae. Should I get MRI that would show my cocyx and filum te...
by coach
Thu Jul 05, 2012 4:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 537202

Re: CCSVI and CCVBP

Interesting post Blossom. Thanks for the info.