This Is MS Multiple Sclerosis Knowledge & Support Community

Get well Dr. Sclafani.

WeWillBeatMS

Dr. Sclafani, now that you've checked out my veins and with the exception of the borderline valve issue you saw with my azygos I showed no signs of CCSVI, I have been hanging out on the CPn Help.org website. I am driving about 8 hours tomorrow to see a doctor up in the panhandle of Florida that trea...

Hi Dr. Sclafani, long time no speakie. I'm still searching for answers outside the MS "diagnosis" that was handed to me six years ago based on MRIs alone. Am I still the only patient diagnosed with MS without CCSVI when you went in with your rotorooter?

pc

Hi Cheer. Long time no speakie. Do you know of any whole foods (as opposed to the supplements) that might be good for encouraging the production of glutathione? By the way, there is a highly respected neurologist in SW Florida who gives his M.S. patient's an I.V. of glutathione when they are having ...

assuming my neurologist has no clue about minocycline w/ the Copaxone, what should the dosage for the minocycline portion be? I know the Copaxone is just one standard syringe per day. Is the dosage for minocycline higher for treating Lyme than the minocycline/Copaxone combo that has been used for tr...

After getting back from Brooklyn a friend told me about that documentary Under Our Skin and I watched it. Freaky stuff. It's crazy to think but it almost seems like the CDC is trying to sweep this Lyme disease under the rug. Just the fact that doctors use this titer test which is so highly inaccurat...

Hey bartman, I was diagnosed with MS in 2005 by three different neurologists only by looking at my MRI and a physical exam. Never tested for Lyme disease. I recently went to Brooklyn to see Dr Sclafani to get checked out for CCSVI. While still lying on the operating table, I drowsily asked him how t...

Bartman, were you misdiagnosed as having MS when it was actually Lyme disease?

WeWillBeatMS

I agree CeCe and thanks for the well wishes. Diet Coke? Just kidding.

Bartman, thanks so much for taking the time to write that thoughtful response.

WeWillBeatMS

Started a new job a month ago and fighting financial challenges. I just tested negative for Lyme with the titer blood test that my neurologist ordered for me. It just went to Quest labs though so I already knew that there was a good possibility that it would come back negative. I will ask if he will...

Sorry you couldn't make it to Toronto. Take it as an opportunity to get some rest this weekend and recuperate. So are you up to sharing what you found out about the positive CCSVI ultrasound last Friday morning and then no CCSVI on Saturday? I was able to find out that none of the three neuros who s...

"I'm in your brain." - Dr Sclafani

He said this one to me while I was on the operating table and I asked him if he was in my jugular vein. Needless to say, I stayed very still after that.

WeWillBeatMS

In the event that Dr Zamboni has a broken leg at the same time he is being awarded the Nobel Prize and is therefore unable to walk up to receive it, I think he should have a handful of liberated CCSVI patients that were formerly confined wheelchairs walk up and accept the award on his behalf. Or bet...

I really apologize for the delay in giving everyone an update but I am actually still trying to figure out what happened. And I'm serious. Here's the deal: My wife and I are born again Christians and we (like many of you I bet) regularly pray for God to do a miraculous healing. Well, prior to the ul...

I tested positive for CCSVI at the AAC office in Staten Island this morning. My veins are restricted! Wahoo! :) I'm writing this from the hotel le bleu in Brooklyn and it's just after 1am and I'm about 10 hours away from turning Dr Sclafani loose on my CCSVI and so I need to get to sleep real soon b...