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by snowbound
Mon Aug 23, 2010 6:30 pm
Forum: Copaxone
Topic: Does anyone feel their MS has got worse?
Replies: 14
Views: 9690

yes i have been on copaxone 12 months and definately have gotten worse no doubt about it. The only person who says that I havent got worse is the neuro and as far as i am concerned he is talking nonsence. he cannot feel what i feel and a ten minute exam once a year is nowhere near sufficient care or...
by snowbound
Tue Jun 15, 2010 2:27 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: [b]EDSS-FSS- MSF and MSIS[/b]
Replies: 5
Views: 2687

[b]EDSS-FSS- MSF and MSIS[/b]

We need people whom have been liberated to start posting their verified EDSS before and after liberation which would help demonstrate the benefits to the medical community that treating CCSVI with balloon dilation is a safe and effective treatment to be considered in treating patients with MS.
by snowbound
Tue Jun 15, 2010 2:23 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Procedure in Poland
Replies: 87
Views: 49960

We need people whom have been liberated to start posting their verified EDSS before and after liberation which would help demonstrate the benefits to the medical community that treating CCSVI with balloon dilation is a safe and effective treatment to be considered in treating patients with MS.
by snowbound
Tue May 04, 2010 7:00 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Letter to Newspapers exposing MS patients denied treatment.
Replies: 5
Views: 2647

Jordan study

sbr487 wrote:Jordan study came out recently and indicates towards ccsvi
Do you have a link to this?
by snowbound
Tue May 04, 2010 6:47 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Letter to Newspapers exposing MS patients denied treatment.
Replies: 5
Views: 2647

Letter to Newspapers exposing MS patients denied treatment.

I am writing to you in the hope that I can interest you in investigating and reporting on why a new treatment discovered last year by Dr Zamboni for Multiple Sclerosis which is proving to have dramatic results for people who are being treated around the world is being denied to patients here in the ...
by snowbound
Sun Apr 18, 2010 4:41 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Azygos Vein
Replies: 6
Views: 3522

where can I find out about the scanning protocol to pass onto my radiologist when I see him next week?
by snowbound
Sun Apr 18, 2010 2:58 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: scanning and treatment protocols
Replies: 1
Views: 1809

scanning and treatment protocols

Hi all
Does anybody know where I can find the Protocols as outlined by Dr Zamboni for both Scanning and Treatment of CCSVI?

Need to start education our radiologists and VS here in the UK!! :)

Thankyou in advance

David
by snowbound
Tue Feb 09, 2010 4:04 pm
Forum: Mental & Spiritual Health
Topic: Alcoholic/Addict working the 12 Steps.
Replies: 2
Views: 12222

Alcoholic/Addict working the 12 Steps.

Hi all
I am an alcoholic/addict who was dx MS in 1996. I work a 12 step program and would like to connect with other alcoholics and addicts who also have MS :-) David
by snowbound
Tue Feb 09, 2010 1:43 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Take on the NHS...
Replies: 42
Views: 10746

how do we get details of CCSVI DUPLEX, vascular surgery etc in the first place to take to our GP as the MS society have washed their hands of CCSVI here in the UK and most GPs do not help without Neurologists agreement which is also unlikely because of the MS roadblock?

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