Search found 89 matches

by mila77
Wed Jan 05, 2011 11:29 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: SYMPTOMS WORSE AFTER LIBERATION
Replies: 13
Views: 2792

ASH10, My procedure looked like yours. Before: symptom free. After: immediate numbness in right hand which continued for 4 months. Additionally during those 4 months some numbness in legs and torso. MRI showed many active leasions so I had to take steroids. Fornunately after steroids treatment I am ...
by mila77
Mon Oct 04, 2010 6:42 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: my first time
Replies: 9
Views: 2363

Re: my first time

Hello, I new one, ill and I need help. I want to have operation I heard about Euromedic and Ameds. Which one is better. Please, please help me and send some info. Many thanks Puma :wink: Hi Puma, I have seen how both of those clinics operate. Euromedic is definitely more experienced, they have star...
by mila77
Sat Oct 02, 2010 2:18 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Thrombosis in stented vein after CCSVI procedure
Replies: 33
Views: 9241

Hi Mila, Just one question: Could it be a relapse from the MS and did you get cortisone or are you just waiting - sitting it out. - certainly with the bloodthinner ! Fliege Fliege, to answer your question yes it was a relapse, actually according to my neurologist it was 3 relapses during 4 months a...
by mila77
Mon Aug 16, 2010 3:29 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post if CCSVI treatment did NOT work for you
Replies: 339
Views: 169908

Mila Were you sent home with a blood thinner? If so what dose which one? Perhaps you stenosed in other areas? Did you get angio in LIJV or have your azgous looked at? Did you enter the left to see if you have MayThurners? Since you are going back again they probably will double check all again. As ...
by mila77
Mon Aug 16, 2010 2:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Thrombosis in stented vein after CCSVI procedure
Replies: 33
Views: 9241

Thank you for sharing this...definitely a cautionary tale...hope now that it's caught you will be feeling better soon. If I may ask, did the stent get thrombosed even if you were on blood thinners? I was on blood thinners for 7 days (injections), on antikagulants for 2 months and now on aspirin for...
by mila77
Mon Aug 16, 2010 2:24 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post if CCSVI treatment did NOT work for you
Replies: 339
Views: 169908

In this sticky of the procedure NOT working for you....did anyone have stents and it NOT work for them? Just curious as I read who has already posted hear many stuck with angio and no stents. So it breaks down- NOT work with angio or NOT work with stents would help see a clearer picture...at least ...
by mila77
Mon Aug 16, 2010 2:04 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Thrombosis in stented vein after CCSVI procedure
Replies: 33
Views: 9241

Thrombosis in stented vein after CCSVI procedure

Hi guys, Maybe some of you remember the story of my CCSVI treatment, but for those who dosnt I will tell it again. My MS started 12 years ago at the age of 18 with optic neuritis in the right eye. I was not diagnosed at that time and I had next 10 years of my life symptom free, then 2 years ago I ha...
by mila77
Sat Aug 14, 2010 3:35 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: anyone experience numbness after being liberated
Replies: 12
Views: 2047

Hi, I had numbness in my right hand starting the minute I left operating room. I was liberated on April 26 and the numbness is still with me. In the meantime, during those 4 months I had numb legs, numb toes, numb torso. When legs numbness goes away the torso starts and so on... Each month something...
by mila77
Thu Aug 12, 2010 7:29 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Any advice for flying to +having treatment in Poland (AMEDS)
Replies: 8
Views: 2114

larmo wrote: I'll reveal my date. My Liberation will be done on the 25th this month at AMEDS. I've read great things about this team.
And I am gonna be at Ameds this Sunday, August 15, but only for the diagnostic tests. Then we will see :-)
by mila77
Wed Aug 11, 2010 5:09 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Any advice for flying to +having treatment in Poland (AMEDS)
Replies: 8
Views: 2114

hi adamt,

I am wondering when u will be at AMEDS?
I already had my CCSVI treatment done in Euromedic Katowice, nothing good came out of this one. And now I am scheduled for the visit at Ameds to ask for the second opinion.

Mila
by mila77
Thu Jul 15, 2010 2:57 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Going Back to Poland for a check Up.
Replies: 7
Views: 2063

I am a bit different case, because I live in Poland. However I did not have to pay a penny for my checkup 2 months post-procedure so I guess it is included in the amount we paid at the beggining of this journey.
by mila77
Mon Jul 05, 2010 2:57 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Katowice, Poland: Good, Bad & Ugly
Replies: 27
Views: 5240

Hi Pam, I have to agree with you that the level of services at Euromedic is not high at all. And believe me it does not look like that im most private clinics in Poland. I am Polish and just like you I was quite shocked when I saw the buildings, especially in Zabrze, where MRV was done. Well Euromed...
by mila77
Tue Jun 29, 2010 10:31 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: NO improvements after procedure
Replies: 24
Views: 6316

Unless it is prohibitively expensive, which I would doubt. Well Ameds is definitely more expensive for Polish because unlike Euromedic, Ameds has the same prices both for Polish and foreigners. But well, luckily it turned out that the cost is not an issue for me, because my american health insuranc...
by mila77
Tue Jun 29, 2010 1:04 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: NO improvements after procedure
Replies: 24
Views: 6316

Hi Mila I too have worsened since i saw you in Katowice. I don't believe that the procedure has anything at all to do with it. I was already declining and that hasn't changed. I'll be back at the end of October - who knows what they'll see. It's not like I can get checked here in Montreal... In the...
by mila77
Sun Jun 27, 2010 10:46 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: NO improvements after procedure
Replies: 24
Views: 6316

Thnax a lot Cece

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