Search found 89 matches
- Wed Jan 05, 2011 11:29 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: SYMPTOMS WORSE AFTER LIBERATION
- Replies: 13
- Views: 3631
ASH10, My procedure looked like yours. Before: symptom free. After: immediate numbness in right hand which continued for 4 months. Additionally during those 4 months some numbness in legs and torso. MRI showed many active leasions so I had to take steroids. Fornunately after steroids treatment I am ...
- Mon Oct 04, 2010 6:42 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: my first time
- Replies: 9
- Views: 3127
Re: my first time
Hello, I new one, ill and I need help. I want to have operation I heard about Euromedic and Ameds. Which one is better. Please, please help me and send some info. Many thanks Puma :wink: Hi Puma, I have seen how both of those clinics operate. Euromedic is definitely more experienced, they have star...
- Sat Oct 02, 2010 2:18 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Thrombosis in stented vein after CCSVI procedure
- Replies: 33
- Views: 12204
Hi Mila, Just one question: Could it be a relapse from the MS and did you get cortisone or are you just waiting - sitting it out. - certainly with the bloodthinner ! Fliege Fliege, to answer your question yes it was a relapse, actually according to my neurologist it was 3 relapses during 4 months a...
- Mon Aug 16, 2010 3:29 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Post if CCSVI treatment did NOT work for you
- Replies: 339
- Views: 243856
Mila Were you sent home with a blood thinner? If so what dose which one? Perhaps you stenosed in other areas? Did you get angio in LIJV or have your azgous looked at? Did you enter the left to see if you have MayThurners? Since you are going back again they probably will double check all again. As ...
- Mon Aug 16, 2010 2:53 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Thrombosis in stented vein after CCSVI procedure
- Replies: 33
- Views: 12204
Thank you for sharing this...definitely a cautionary tale...hope now that it's caught you will be feeling better soon. If I may ask, did the stent get thrombosed even if you were on blood thinners? I was on blood thinners for 7 days (injections), on antikagulants for 2 months and now on aspirin for...
- Mon Aug 16, 2010 2:24 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Post if CCSVI treatment did NOT work for you
- Replies: 339
- Views: 243856
In this sticky of the procedure NOT working for you....did anyone have stents and it NOT work for them? Just curious as I read who has already posted hear many stuck with angio and no stents. So it breaks down- NOT work with angio or NOT work with stents would help see a clearer picture...at least ...
- Mon Aug 16, 2010 2:04 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Thrombosis in stented vein after CCSVI procedure
- Replies: 33
- Views: 12204
Thrombosis in stented vein after CCSVI procedure
Hi guys, Maybe some of you remember the story of my CCSVI treatment, but for those who dosnt I will tell it again. My MS started 12 years ago at the age of 18 with optic neuritis in the right eye. I was not diagnosed at that time and I had next 10 years of my life symptom free, then 2 years ago I ha...
- Sat Aug 14, 2010 3:35 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: anyone experience numbness after being liberated
- Replies: 12
- Views: 3061
Hi, I had numbness in my right hand starting the minute I left operating room. I was liberated on April 26 and the numbness is still with me. In the meantime, during those 4 months I had numb legs, numb toes, numb torso. When legs numbness goes away the torso starts and so on... Each month something...
- Thu Aug 12, 2010 7:29 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Any advice for flying to +having treatment in Poland (AMEDS)
- Replies: 8
- Views: 2783
- Wed Aug 11, 2010 5:09 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Any advice for flying to +having treatment in Poland (AMEDS)
- Replies: 8
- Views: 2783
- Thu Jul 15, 2010 2:57 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Going Back to Poland for a check Up.
- Replies: 7
- Views: 3013
- Mon Jul 05, 2010 2:57 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Katowice, Poland: Good, Bad & Ugly
- Replies: 27
- Views: 7332
Hi Pam, I have to agree with you that the level of services at Euromedic is not high at all. And believe me it does not look like that im most private clinics in Poland. I am Polish and just like you I was quite shocked when I saw the buildings, especially in Zabrze, where MRV was done. Well Euromed...
- Tue Jun 29, 2010 10:31 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: NO improvements after procedure
- Replies: 24
- Views: 9293
Unless it is prohibitively expensive, which I would doubt. Well Ameds is definitely more expensive for Polish because unlike Euromedic, Ameds has the same prices both for Polish and foreigners. But well, luckily it turned out that the cost is not an issue for me, because my american health insuranc...
- Tue Jun 29, 2010 1:04 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: NO improvements after procedure
- Replies: 24
- Views: 9293
Hi Mila I too have worsened since i saw you in Katowice. I don't believe that the procedure has anything at all to do with it. I was already declining and that hasn't changed. I'll be back at the end of October - who knows what they'll see. It's not like I can get checked here in Montreal... In the...
- Sun Jun 27, 2010 10:46 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: NO improvements after procedure
- Replies: 24
- Views: 9293