Search found 12 matches

by tashenoir
Sat Jun 05, 2010 9:47 am
Forum: General Discussion
Topic: Immune Ablation
Replies: 1
Views: 1356

Immune Ablation

I am currently at RUSH University Medical Center, and have been here now for 16 days. Started with the 4 days of High Dose Cytoxan, and then after bottoming out my WBC counts, started shots of Nuepogen. 7 days and shots later, my counts tripled! Doctor says I'm about 4 days from discharge! I already...
by tashenoir
Sat May 29, 2010 1:01 pm
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: Symptoms
Replies: 2
Views: 4673

:D Hi AJ,

Haven't posted because I am currently at RUSH having HiCy! I am now on my first shot of neupogen. The chemo part is worst, until they get your nausea under control, then you're fine.

I will pray for you, do lots of research so you can sell it to your doctor!

HUGS
by tashenoir
Sun Apr 04, 2010 2:02 pm
Forum: General Discussion
Topic: Does MS cause weight loss? Does anyone have this problem?
Replies: 33
Views: 41648

I am also.underweight. 105lbs at 5'5". I have had all the tests, upper GI, colonoscopy, thyroid test. Conclusion, I have a very slow system and longated colon due to MS. I have to take senna pills to make my system have a bowel movement every 3 days, otherwise it would be every 10 days. When I'm ful...
by tashenoir
Sat Apr 03, 2010 8:38 pm
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: cyclophosphamide for MS
Replies: 28
Views: 11802

Hycy, high dose cytoxan, immune ablation

I am glad Keri posted! she knows a lot. I am doing this at RUSH University Medical Center in Chicago. I will admitted for about 21 days. I liked this option, I don't have to depend on my husband to get me back and forth to IPOP and all meds are readily available. I have started the protocol inclusio...
by tashenoir
Sat Apr 03, 2010 5:02 pm
Forum: General Discussion
Topic: Story on a patient's experience with chemotherapy
Replies: 7
Views: 1490

I fancy the idea of revimmune but I won't do it until I've had children as there is a risk it could cause infertility.

100% agree....can cause early menopause too!
by tashenoir
Sat Apr 03, 2010 1:27 pm
Forum: General Discussion
Topic: Story on a patient's experience with chemotherapy
Replies: 7
Views: 1490

:D Just realized Apuman's URL is Michelle's story...LOL. That's awesome! She has a blog too. You can also google rebooting Kathy , also HiCy for amanda. I have more if you want them. :)
by tashenoir
Sat Apr 03, 2010 1:22 pm
Forum: General Discussion
Topic: Story on a patient's experience with chemotherapy
Replies: 7
Views: 1490

Immune Ablation

Immune Ablation is what they call it at RUSH University Medical Center. I will be having it done sometime in May. I've already started protocol and have started all the inclusion testing. Yes, I will lose my entire immune system, but the one I have now is telling some of my white blood cells to atta...
by tashenoir
Tue Mar 02, 2010 5:36 pm
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: vitamin D?
Replies: 11
Views: 7079

5000 IU of D3.

:D
by tashenoir
Tue Mar 02, 2010 5:30 pm
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: How Do I Get It????????
Replies: 3
Views: 4715

First you have to want it! Sounds like you do! Research it like crazy, so you know what is going to happen. Make a choice of how you want it. John Hopkins you are in the hospital for 4 days to get the chemo, then IPOP. (in patient /out patient care) you stay at a hotel nearby. At RUSH University Med...
by tashenoir
Wed Feb 17, 2010 2:03 pm
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: GoodBye Tysabri Hello HiCy?
Replies: 3
Views: 4906

GoodBye Tysabri Hello HiCy?

Just asking for prayers for I will be in Chicago on Monday for my consultation to get HiCy.

Thanks everyone and I wall let you all know, maybe before I come home on the 25th. I think my laptop comes tomorrow!
by tashenoir
Sat Feb 13, 2010 7:07 pm
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: Chrishadms you tube video and facebook video
Replies: 11
Views: 5875

HiCy

There is no victim....there is no winner or loser. It may ruffle feathers that when your trying to sell a treatment that has done so much for you as an individual, someone that does not have the disease your trying to cure, shoots you down. Not saying he shot him down, but it may of felt like that t...
by tashenoir
Sat Feb 13, 2010 6:43 pm
Forum: General Discussion
Topic: Does anyone here use a inversion table ?
Replies: 8
Views: 5210

Inversion Tables

I have one and LOVE it! I don't hang everyday, because if you have dizzy MS feeling it will make it worse. If my back feels stiff or getting sore, I hang upside down for only 10 minutes and the next day my back feels fine. I hang partway sometimes, not totally inverted. It still helps when gravity p...