This Is MS Multiple Sclerosis Knowledge & Support Community

Dear Dr Sclafani I need your advice. My son is 40 years old and he was diagnosed with CIS in September 2009 . He has been asymptomatic. Since I am extremely worried regarding the progression of MS, if he is CCSVI positive, should he undergo angioplasty at this stage, or should he wait for further re...

Hello Cheer

I would like to thank you for your excellent advice regarding CCSVI.

I believe that AlmostClever should start an index alike Dr Sclafani's

with your posts.

miranda

Dear Dr. Sclafani My son is on your waiting list but unfortunately we did not anticipate such a delay. He fractured his right clavicle about 10 years ago. The orthopaedic placed a screw which he later removed. He was diagnosed with MS Sept 2009. I have mailed all his medical reports to Holly. Since ...

I called Marcin Duszynski and he told me that since we registered on

February 2nd the waiting period is maximum 3 months. As far as the

training regarding ccsvi testing , the doctors were trained in Italy by the

company that manufactures their medical testing equipment.


miranda

Trine

Dr. Grozdinski's email is : grozdinski@mail.bg


miranda

Cure or not Cure that is the Question ? AT LEAST LET NO ONE STOP US FROM FINDING OUT But in order to get the answer asap is by continuing to communicate the data regarding CCSVI in our own countries. The Canadians are a shiny example trying to include ccsvi in their health system. In the meantime Le...

If you have completed the preliminary registration with AMEDS they
will contact you in the next two weeks to set the dates for the testing
and treatment. In the meantime email them and ask for a confirmation of your registration.


miranda

Please let us know if someone has been tested or had the vascular
procedure in Bulgaria with Dr. Grozdinski ? Thanks!!!!!

Miranda

Dear Dr. Sclafani, Just a quick note The Health ministry of Kuwait !!!!!! decided to treat all its 6000 MS patients with CCSVI angioplasty . The operations would be conducted after a written approval by the patients and informing them on possible side effects of the operation. ( Source Kuwait News A...

Hi Sue

How are you? Thank you so much for being a pioneer in Greece !

Posting all the relevant details regading Dr. Liassis is just great

Very best wishes

miranda

Terrific news! It is really great that you had the testing done locally .

I believe that you should schedule the liberation asap


Miranda

Dr. Sclafani THANK YOU for coming on board. It has been impossible to obtain any information regarding ccsvi in Greece . Your valuable knowledge is much appreciated by everyone on thisisms Holly has been great trying to help me. Looking forward to meeting you soon I am positive that once again you w...

Hi Costume National I think that your password is very chic. I understand that it is wise to seek the advice of a Greek vascular surgeon, but I doubt that they have the training to detect ccsvi,or are up to date with the necessary epuipment. By the way , do you intend to accept the Euromedic conditi...

Hi all, Just a quick note regarding ccsvi awareness in Greece . I was informed that the Canadians are writing letters to their ministers in order to include ccsvi in their health system and in the United States they will soon have ccsvi alliance. Iam worried regarding clinics popping up around the w...

Hi all

Sue once more thank you for all the detailed info. I would like to inform

everyone that I received an email from a new clinic AMEDS in Poland

apparently they will be starting the ccsvi testing in April anyone interested

should register.

miranda