This Is MS Multiple Sclerosis Knowledge & Support Community

I have spent many days, many hours, reading through posts relating to people who have PPMS and have had the liberation operation. My eyes are so tired! I think the tracking project is great, but I thought it would be a good idea to have a post where we PPMS'ers can post any changes after the procedu...

Dear Dr. Sclafani, I have a huge decision to make. I have just received dates to have the liberation procedure done in Poland in April, but I have also met with a vascular surgeon in the States who can perform the treatment. I'm booked to have an MRV March 22nd, and the treatment a week or two after...

Thanks for the advice Michelle! Ella is soooo lucky to have such a wonderful mother supporting and looking out for her!

Not sure I'm posting on the right thread, but I was wondering - if you go to Poland for the treatment, are you supposed to go back for a check-up to make sure things haven't closed up again? If so, what is tge time lapse - ie. one month later?

How long do you have to go off the LDN for? And thanks for such a speedy reply!!

Hello, I've read a couple of posts where people have stopped taking LDN prior to having the Liberation treatment. Does anyone know why this would be? Also, what meds are the doctors prescribing post-op? I'm on the list for Poland and still waiting for a date! Thank you!