Search found 10 matches

by Indiana
Thu Jul 22, 2010 2:54 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Which to pick: Dr Vogl in Germany or Ameds Centrum in Poland
Replies: 28
Views: 7843

:D :D :D Having ppms, my expectations were low. Beelen promised me less fatigue and better heat tolerance. I got much more... Beter movement in my fingers (Left) I could open my hand completely Better balance Better walking (no cane anymore) Clear head, better smell, better hearing I'm better compa...
by Indiana
Wed Jul 21, 2010 11:30 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Which to pick: Dr Vogl in Germany or Ameds Centrum in Poland
Replies: 28
Views: 7843

Thank you, Joge, for these brand new informations.

Do you feel any improvements since the procedure?


Indiana
by Indiana
Fri May 07, 2010 5:33 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: no left jugular vein
Replies: 13
Views: 5162

That does not matter, Fernando!

Thanks, Shye, for your advice. I wrote to Dr Scafani and he answered me immediately. He recommanded to me that I should try to get another opinion or to have another venogram.

That might be difficult in France!


Indiana
by Indiana
Fri May 07, 2010 2:57 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2659838

Dear Dr Sclafani! I was diagnosed RRMS in november 2007, at the age of 51. In march 2009, I had a second relapse. All my lesions are in the spinal cord. I am suffering from sensitive problems, weekness in the legs, tinitus and pain. I recently had a doppler done in France, that showed no blood flow ...
by Indiana
Fri May 07, 2010 2:05 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: no left jugular vein
Replies: 13
Views: 5162

Hello again! Thank you so much for the interest that you show on my case! To answer to some of your questions: I had an MRV first and than a venogram. During this examination, the doctor had the intention to balloon the stenosis visible in the right jugular vein (on the MRV). When she entered into t...
by Indiana
Thu May 06, 2010 11:09 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: no left jugular vein
Replies: 13
Views: 5162

hello, guys! Thank you so much for all your nice comments and your advices! My MS was diagnosed on october 2007, at the age of 51. I had two bad relapses until now, all the lesions are in the spinal cord. I am suffering from sensitive problems, weekness in in the legs and pain. After my second exace...
by Indiana
Thu May 06, 2010 9:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: no left jugular vein
Replies: 13
Views: 5162

no left jugular vein

Hi, everybody! I recently had a doppler done in France, that showed no blood flow at the left side of the neck and a stenosis in the right jugular vein. Than I had an MRV done. The doctor explained it to me, telling me that I had no left jugular vein at all, and that there was a stenosis in the righ...
by Indiana
Wed Mar 17, 2010 1:33 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: results Doppler
Replies: 0
Views: 1556

results Doppler

Hi, ererybody! Normally, one should be glad learning that everything is OK after an examination, but in our case, this kind of result is quite disappointing. I am really sorry for you, Jojob! But don't loose hope! Perhaps the absence of flow in the left vertebral vein is for something in your MS sym...
by Indiana
Mon Mar 15, 2010 9:10 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New update on husband/ waste of time
Replies: 28
Views: 9765

dr Franceschi and Dr Greiner

Hi, everybody! I had my doppler done by Dr Franceschi today. He seems to be a very nice doctor. We are lucky to have somebody like that in France! He found that I had a stenosis of the right jugular vein with correct blood flow. There is now blood flow at the left jugular vein. The blood flow is imp...
by Indiana
Wed Mar 10, 2010 12:07 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New update on husband/ waste of time
Replies: 28
Views: 9765

re dr Greiner

Thank you, Jean, for these informatione! I have got an appointment with Dr Franschetti on monday 15th of march, but I did not precise that it was for a CCSVI diagnosis. Would it be better to tell him that before? How can we get in contact with Dr Greiner? have you got an E-mail adress? I hope that y...

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